PPMD's Living Duchenne

This season of Living Duchenne digs into the rich topic of caregiving and Duchenne. On this episode our host, Rachel Poysky, chats with Duchenne friends and experts, Rachel Callander (facilitator for PPMD's Lighthouse Workshops) and pediatric neuropsychologist from Children's CO, Paige Naylor, about their insights on dynamics that can contribute toward a caregiver growth mindset. Listen in on this important, wide-ranging conversation around areas such as addressing over functioning, finding "micro joys," and understanding the connection between your child's independence and your own as a primary caregiver.

Welcome to another episode in our series on Caregiver Burnout. How do you ask for help--especially if you're navigating a clinical trial experience? What does it mean to put a little more focus on yourself? How does a Duchenne caregiver structure their day? These are some of the questions we explore in our candid conversation with our host, Rachel Poysky, and guests Clare Perin and Susan Caldwell. These moms and caregivers of kids with Duchenne bring their insight and honesty to fielding the busy, ever-changing experiences in a Duchenne family.

Join us for another great episode in our Living Duchenne podcast series. This season we are bringing folks together to talk about caregiver burnout. Our fantastic host, Rachel Poysky, sits down with Duchenne Mom, Joanna Johnson, for a spirited and candid conversation about caregiving in the midst of raising a young adult. Rachel and Joanna dig into recognizing the signs of burnout, setting boundaries and limits for yourself with your family, and getting clear on what you need that is 100% FOR YOU (and letting the rest of the household know it). Joanna brings humor and important perspective on her caregiving experiences to date that are sure to resonate with others no matter where you are on your Duchenne journey.

Welcome to our third episode in this season's PPMD podcast, Living Duchenne. Our topic is Raising and Independent Child. We welcome Adam Wechsler, a 29-year old man living with Duchenne, and Gretchen Agans, mom to Liam, a young adult living with Duchenne to talk about building independence and purpose in this time where young people are transitioning into early adulthood. Our host Rachel Poysky talks with Adam and Gretchen about remaining open to the many opportunities that exist for young men living with Duchenne--higher education, service, volunteerism, entrepreneur possibilities, consulting, and so much more. Join us and share to invite others to the conversation!

Please join us as we continue our discussion on Raising an Independent Child: The Middle Years. Our guests include Colleen Labbadia and Kate Vanderweele sharing their experiences parenting in those adolescent and early teen years (middle school and high school ages) with a mindset of preparing their children for a future with independence. Listen in on this great conversation where Colleen and Kate talk through successful practices to build ownership, self-advocacy, and incorporate "low stakes" situations that empower their young boys to autonomy.