Claim Ownership4D: Deep Dive into Degenerative Diseases - ANPT
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©2020 Academy of Neurologic Physical Therapy
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The Academy of Neurologic Physical Therapy Degenerative Disease Special Interest Group (DDSIG) is a component of the American Physical Therapy Association. The DDSIG is comprised of physical therapists, physical therapist assistants, and students in physical therapy programs that have an interest in neurodegenerative disorders including Parkinson’s disease, multiple sclerosis, amyotropic lateral sclerosis, Huntington’s disease, and others. The DDSIG provides a forum to discuss advances in practice and the challenges of providing care for individuals with neurodegenerative disease. They are a valuable networking tool to help researchers, educators, and clinicians in the area of neurodegenerative disorders connect, share ideas, and learn from leaders in the field.
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In this episode, host Parm Padgett welcomes Taylor Takla to discuss her article, "Motor and Non-Motor Factors of Concern About Falling and Fear of Falling in Multiple Sclerosis” published in the October 2024 issue of JNPT. Taylor’s research delves into the complexities behind fear of falling and contributing factors among individuals with MS. Join the conversation to explore the clinical implications of her findings and how they can influence therapy approaches for those living with MS.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Show notes available at: https://app.box.com/s/95du2gsslgm6xl0pzyitqv3zrpwpxybc
In this episode, host Ken Vinacco interviews Franchino Porciuncula, the winner of the DDSIG platform award at CSM 2025 in Houston, TX. They discuss his research related to utilizing closed-loop, music-based rhythmic auditory stimulation (RAS) with people with Parkinson’s Disease (PD). They review the impact on real-world walking and gait quality, as well as participant feedback. He discusses ways to integrate use of RAS in clinic, highlighting both the complex nature of PD and challenges and limitations observed in this randomized clinical trial.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes: https://app.box.com/s/yqos32rt9wf5ofdshnsiwedxh8ftny7i
In this episode, host Ken Vinacco talks with guest Gia Mannone to discuss the resources that the Huntington’s Disease Society of America (HDSA www.hdsa.org ) offers for people with HD. Gia discusses events, ways to find specialized medical care, and education for people with HD in all stages of the disease. If you treat people with HD, you’ll likely find something new to share after a listen!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Show notes available: https://app.box.com/s/87w9nzdiaqqyo937ibcgc392hifagq8m
This episode of 4D highlights results and implications from an article in the July 2025 Journal of Neurologic Physical Therapy special issue on walking in people with neurological health conditions. Host Parm Padgett interviews two authors, Michael (Mike) VanNostrand and Patrick (Paddy) Monaghan, about their recent study examining the role of proprioception in backward walking in people with multiple sclerosis, as well as previous work related to backward walking. If you’re curious about how to interpret backwards walking and incorporate it into your clinical practice, this episode is for you!
Show notes available: https://app.box.com/s/0om94igfagb23nzm8v7ck18gx3mkj5l7
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
In this episode, host Ken Vinacco sits down with guests Lauren LaMar and Kyle Vasher to discuss the range of resources that the ALS Association offers for people with ALS. Lauren shares her role in the multidisciplinary clinic as well as the range of online, local and one-on-one support services offered for patients and caregivers. Kyle adds his input as a DD SIG liaison and treating therapist. Filled with great advice, perspective and practical resources to share with patients, this is a helpful listen for PTs treating patients with ALS.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Resources from the ALS Association
Medicare information: https://www.als.org/navigating-als/financial-information/medicare-information
Caregiver education and support groups: https://www.als.org/navigating-als/support-for-caregivers
Care Matters newsletter: https://www.als.org/care-matters-sign-up
Multidisciplinary clinic locator: https://www.als.org/support/certified-centers-clinics
Education for healthcare professionals: https://www.als.org/navigating-als/education-healthcare-professionals
- Rehabilitative Care for ALS: Guidance for PTs and OTs: https://app.schoox.com/login.php?courseId=8207995
Printed materials: https://www.als.org/order-portal
Transfer technique videos: https://www.youtube.com/watch?v=C6QI9CQO63I&list=PL2RF9Bwbv6Com3nZM-jFh_EGl3Gmn6S43
Virtual home modification and safety assessment program: https://www.als.org/support/programs/virtual-home-modification-and-safety-assessment-program
ALS Insurance Navigator https://www.als.org/support/als-insurance-navigator
ALS Advocacy Team https://www.als.org/advocacy/action-center
Show notes: https://app.box.com/s/q45h3p0fsgiuzluwxtzajnupp5hyofr2
In this insightful episode, host Parm Padgett sits down with Dr. Alice Nieuwboer, a leading expert in Parkinson’s rehabilitation, to unpack the complex and frustrating phenomenon of freezing of gait (FOG). From the role of dopamine loss and neural "overload" to the influence of stress, motor challenges, and cognitive demands, Dr. Nieuwboer explains what we know about the factors influencing FOG. She also shares the latest research on freezing subtypes, how medication impacts symptoms, and why defining FOG remains a moving target. Full of clinical pearls and research updates, this conversation offers fresh hope and practical strategies for therapists and clinicians navigating the challenges treating people with FOG.
Show notes available: https://app.box.com/s/gcyeiq1xk326ltqxj6zgemlfqtkgoooa
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
In this episode, host Ken Vinacco sits down with special guest Donna Sperlakis to explore the wide range of resources and support services offered by the Parkinson’s Foundation. Together, they dive into the educational tools, community programs, and research initiatives designed to empower individuals living with Parkinson’s disease and their families. Donna shares personal insights and expert advice on how to access these resources and make the most of the resources offered. This conversation provides valuable information and encouragement for everyone touched by Parkinson’s.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.orgFor questions about this podcast, please contact neuroddsig@gmail.com.
Show notes available here: https://app.box.com/s/a97fdclbbznlsqti6uhvh01ctwlnykly
In this episode, Parm interviews Lisa Inglis, the winner of the DDSIG poster award at CSM 2025 in Houston. Lisa, a PT and professor at Daemen college, explains her research related to measuring backward walking and comparing backward walking characteristics of people with and without Parkinson’s Disease (PD). She goes on to discuss potential uses of backward gait assessment in PT practice.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available here
Join our podcast team members, Sara Zoeller and Parm Padgett, as they discuss the in-person and on-demand degenerative diseases programming (and some DD-adjacent talks) at this year’s CSM in Houston, TX. This podcast highlights talks and authors to help you plan your best CSM experience, complete with fun haikus and a CSM song at the very end of the bloopers - listen for that! The DD SIG committee and members of the 4D podcast team will be visible at the poster session on Friday from 1-3 pm and at the Myelin Melter on Friday evening. Please come find us and introduce yourself, we'd love to hear your ideas for our podcast (comments, future topics, etc). Happy CSM!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Show notes available at: https://app.box.com/s/9zeyy65ft2pdksilfh28orw5dworu6vu
In this episode, host Parm Padgett is joined by Miriam Rafferty and Monica Hendricksen from Shirley Ryan Ability Lab to explore the impact of current care models on individuals with neurologic conditions. Together, they delve into the opportunities and challenges of adopting innovative approaches to care and examine how these models can improve outcomes and transform practice. They take the discussion from theory to practice by reviewing a recent case series applying a consultative, proactive model of PT for people with MS. Tune in for an insightful discussion on the future of neurologic care and the practical steps to implement these models of care in your practice.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Show notes: https://app.box.com/s/vrfnib0mg981h0smaxbkhgh4ebqk9887
In this episode, host Ken Vinacco talks to guest Kristina Vaughn to discuss the role of physical therapists working with individuals with normal pressure hydrocephalus (NPH). NPH is a condition that leads to excess accumulation of cerebrospinal fluid in ventricles of the brain. This can lead to gait abnormalities, cognitive changes, and urinary incontinence. Ken and Kristina discuss how to differentiate from other neurologic diagnoses and what PTs can do to in the clinic or as a member of a multi-disciplinary NPH clinic team.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Show notes available: https://app.box.com/s/zzlyovhljhzm6qscq11lrfbp9v8z40ev
In this episode, host Ken Vinacco talks with Bobby Hand about the role and intricacies of skilled maintenance therapy for individuals with degenerative diseases. Skilled maintenance therapy is the care that physical therapists can provide to individuals who have conditions with no curative treatment. Bobby and Ken delve into how PTs can provide therapy that impacts the individual’s quality of life, even when they are not expected to make improvements. Bobby shares examples from his clinical practice, and tips for making it work for your practice.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com
Show notes available here: https://app.box.com/s/h12shsaxu8lpaaxabxk798qd96rpud41
In this special episode, our podcast team interviewed listeners and former guests at CSM 2024 to find out what they were excited about doing when treating people with neurodegenerative conditions. We are excited to share their answers with you, along with some commentary from our current team, as a celebration of our 50th episode.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Please send comments or questions on this podcast to neuroddsig@gmail.com.
In this installment of our series on rare neurologic diseases, host Ken Vinacco talks with Claudia Senesac about physical therapy for people with Duchenne Muscular Dystrophy (DMD) and Becker Muscular Dystrophy (BMD). DMD and BMD are both disorders that cause progressive muscle weakness, with BMD often presenting with less severe weakness and later in life. Claudia covers the medical management and prognosis, PT assessment, and PT treatment for people with these unique diagnoses.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
A link to the show notes will be posted here when available
In this installment of our series on rare neurologic diseases, Ken Vinnaco talks with Megan Iammarino about physical therapy for people with Limb Girdle Muscular Dystrophy (LGMD), an umbrella term that encompasses a varied group of disorders affecting the proximal muscles around the shoulders and hips that impacts approximately 2 in every 100,000 people. Megan covers the assessment, PT treatment and prognosis for people with this unique diagnosis that causes significant balance and gait challenges.
Show notes available here : https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-48-megan-iammarino-lgmd.pdf
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
In this episode, Chris interviews Michelle Walaszek, a winner of the DDSIG platform award at CSM Boston in 2024. Michelle, a PhD candidate and research associate in the Knowledge Translation of Exercise and Activity for Symptom Management (KTEAM) lab at Shirley Ryan AbilityLab, explains important qualitative research that her team completed in their local Chicagoland area. She discusses themes that arose from survey data and analysis that assessed attitudes and experience with PD rehabilitation care for the Black or African American (BAA) community. Chris and Michelle also talk about some early applications of this information for clinicians, as well as next steps in the research.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
In this episode, Parm interviews Chelsea “CJ” Duppen, a winner of the DDSIG platform award at CSM Boston in 2024. CJ, a fourth year PhD student at the University of North Carolina, works with Dr. Mike Lewek in the Recovery of Gait and Neurorehabilitation (ReGaiN) lab, studying gait and gait initiation impairments in people living with Parkinson Disease, as well as motor learning. Parm and CJ discuss CJ’s poster, “Gait Initiation Dynamics in Parkinson Disease: Impact of Weight Shift Amplitude and Freezing of Gait.” CJ tell us about the importance of anticipatory postural adjustments for weight shifts required in gait initiation, and how these play a role in first step length. Have you ever wondered if better weight shift improved someone with PD’s first step? Listen in to learn more!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
In this episode, Chris Burke interviews Kayla Chomko who, along with Jen Canbeck, Lauren Tabor Gray, and Rania Massad, won the DDSIG Best Poster Award at APTA’s Combined Sections Meeting in February 2024. Chris and Kayla discuss her team’s poster, “The Tinetti Performance Oriented Mobility Assessment Discriminates between Fallers and Non-Fallers in pALS: A Retrospective Study”. They delve into the impetus for and findings from their research, how Kayla utilizes data from outcome measures to facilitate patient discussions in clinic, and what direction future research may take.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Are you a PT who works with this population? Participate in a national survey on outcome measures for Physical Therapists and Physical Therapist Assistants working with pALS (Link active as of April 2024): https://redcap.nova.edu/redcap/surveys/?s=JKYLEC3KC9RFK7WF
Show notes available here: https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/csm-award-winners-bonus-episode-2---kayla-chomko.pdf
In this episode of 4D, hosts Parm Padgett and 4D student intern Shannon Brown talk through the degenerative disease programming scheduled for CSM 2024. If you’re going to CSM this February, tune in while you travel, or even while you commute from your hotel in the morning to get some inspiration for what to see each day. We at 4D hope to see you there!
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy –www.neuroPT.org
Learn more about CSM and the programming discussed by visiting the CSM website: https://www.apta.org/csm
This is for informational and educational purposes only. It should not be used as a substitute for clinical decision making. The Academy of Neurologic Physical Therapy and its collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication. The views or opinions expressed are those of the individual creators and do not necessarily represent the position of the Academy of Neurologic Physical Therapy
In this installment of our series on rare neurologic diseases, Christina Burke talks with Jeannie Stephenson and Staci Shearin about Friedreich’s Ataxia, a progressive, autosomal recessive hereditary multi-system neurodegenerative disease that impacts approximately 1 in 40,000 people in the U.S. Jeannie and Staci cover assessment, PT treatment and prognosis for people with this unique diagnosis that causes significant balance and gait challenges.
The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org
Show notes available here :
https://www.neuropt.org/docs/default-source/degenerative-diseases-sig/4d-podcast-show-notes---2019/ddsig-podcast-show-notes-2023/show-notes---episode-47-jeannie-stephenson-staci-shearin.pdf
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