DD SIG Navigating the Path Episode 3: The ALS Association
Description
In this episode, host Ken Vinacco sits down with guests Lauren LaMar and Kyle Vasher to discuss the range of resources that the ALS Association offers for people with ALS. Lauren shares her role in the multidisciplinary clinic as well as the range of online, local and one-on-one support services offered for patients and caregivers. Kyle adds his input as a DD SIG liaison and treating therapist. Filled with great advice, perspective and practical resources to share with patients, this is a helpful listen for PTs treating patients with ALS.
The Degenerative Diseases Special Interest Group is part of the Academy of
Neurologic Physical Therapy – www.neuroPT.org
For questions about this podcast, please contact neuroddsig@gmail.com.
Resources from the ALS Association
Medicare information: https://www.als.org/navigating-als/financial-information/medicare-information
Caregiver education and support groups: https://www.als.org/navigating-als/support-for-caregivers
Care Matters newsletter: https://www.als.org/care-matters-sign-up
Multidisciplinary clinic locator: https://www.als.org/support/certified-centers-clinics
Education for healthcare professionals: https://www.als.org/navigating-als/education-healthcare-professionals
– Rehabilitative Care for ALS: Guidance for PTs and OTs: https://app.schoox.com/login.php?courseId=8207995
Printed materials: https://www.als.org/order-portal
Transfer technique videos: https://www.youtube.com/watch?v=C6QI9CQO63I&list=PL2RF9Bwbv6Com3nZM-jFh_EGl3Gmn6S43
Virtual home modification and safety assessment program: https://www.als.org/support/programs/virtual-home-modification-and-safety-assessment-program
ALS Insurance Navigator https://www.als.org/support/als-insurance-navigator
ALS Advocacy Team https://www.als.org/advocacy/action-center
Show notes: https://app.box.com/s/q45h3p0fsgiuzluwxtzajnupp5hyofr2
United States
