Long COVID Real Talk Podcast

BONUS EPISODE #10: My ME/CFS Clinic AppointmentKeywords: Long COVID, ME-CFS, medication, low dose naltrexone, GLP-1 agonist, health management, patient experience, community supportSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses her recent appointment at the Stanford ME-CFS clinic, focusing on medication management, personal experiences with long COVID, and the importance of community support. She shares insights on her medication adjustments, including low dose naltrexone and GLP-1 agonists, and reflects on her lifestyle changes and interactions with listeners.Takeaways:The importance of medication management in long COVID treatment.Adjusting dosages of low dose naltrexone can be challenging.Personal experiences with medications can vary widely among patients.Community support plays a crucial role in managing long COVID.Lifestyle adjustments, like cold water showers, can impact symptoms.Patient feedback is valuable for understanding treatment efficacy.Engaging with listeners fosters a sense of community.Anecdotal evidence is significant in the absence of large studies.Communication with healthcare providers is essential for effective treatment.Maintaining a balance between activity and rest is vital for recovery.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

Keywords: Long COVID, health challenges, personal reflections, financial struggles, workers' compensation, family focus, mental health, cold water therapy, symptoms, recoverySummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey with long COVID, discussing her health challenges, including urinary symptoms and the impact on her daily life. She reflects on her struggles with workers' compensation and the financial burdens that have arisen from her condition. Despite these challenges, she emphasizes the importance of focusing on her family and maintaining hope for the future.Takeaways:Katherine is focusing on sharing her personal experiences rather than trying to help others.She has restarted cold water therapy as part of her routine.Katherine is experiencing painful urinary symptoms related to long COVID.She has seen a urologist, and tests have ruled out serious conditions.Katherine is navigating the complexities of workers' compensation.She feels embarrassed about her struggles with daily activities.Financial hardships are exacerbated by her long COVID condition.Katherine is taking medication that helps with inflammation and symptoms.She is trying to maintain a positive outlook for the future.Katherine emphasizes the importance of focusing on her daughter during this time.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E21 What Stress Does To Your RecoveryPlease share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E20: A Surprise -- And Not The Good KindKeywords: Long COVID, workers' compensation, health challenges, disability retirement, mental health, personal stories, resilience, navigating bureaucracy, support systems, coping strategiesSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey navigating the complexities of the workers' compensation system while dealing with long COVID. She discusses the challenges of returning to work, the emotional toll of bureaucratic processes, and the importance of maintaining a positive outlook despite the difficulties. Katherine emphasizes the need for support and understanding from others as she balances her health and responsibilities.Takeaways:Katherine received a light duty job offer from HR.She feels frustrated with the workers' comp system.Maintaining a positive mindset is crucial for her.She is grateful for the support she has received.Katherine is concerned about the impact of returning to work.She emphasizes the importance of being honest about her health.Navigating bureaucracy can be emotionally taxing.Katherine reflects on the financial implications of her situation.She acknowledges the luck of having workers' comp benefits.Vulnerability and honesty help connect with others.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E19 When Getting Better Feels WorseKeywords: Long COVID, recovery, mental health, family dynamics, acceptance, uncertainty, personal growth, therapy, chronic illness, self-careSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey of navigating the complexities of recovery from long COVID. She discusses the emotional challenges of wanting to return to normal life while managing the realities of her health. Katherine reflects on the impact of her illness on her family, the uncertainty of her recovery timeline, and the importance of self-care and flexibility in her thinking. Through her candid reflections, she aims to connect with others facing similar struggles and emphasizes the need for understanding and support in the long COVID community.Takeaways:The beginning of recovery can be emotionally challenging.Anticipatory anxiety can hinder the desire to return to normalcy.Family dynamics are significantly affected by chronic illness.It's important to prioritize self-care during recovery.Uncertainty about recovery timelines can be distressing.Small improvements in health should be celebrated.Flexibility in thinking can ease the pressure of recovery expectations.Maintaining a balance between responsibilities and health is crucial.Therapy can provide valuable insights and coping strategies.Sharing experiences can foster connection and support within the community.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E18: "Hype or Hope: GLP-1 Agonists & Long COVID?"Keywords: GLP-1, Long Covid, ZepBound, Monjaro, Ozempic, weight loss, brain fog, inflammation, immune regulation, healthcareSummary: In this episode of Long Covid Real Talk, Katherine Marie discusses her experience with GLP-1 agonists, particularly ZepBound, and their potential benefits for individuals suffering from long COVID. She shares her personal journey, the science behind GLP-1s, and the importance of consulting healthcare providers before starting any new medication. Katherine emphasizes the need for more research and encourages listeners to stay informed and proactive about their health.Takeaways:I started ZepBound, which is a medication.More long haulers are reporting improvements in fog, inflammation, and mood.GLP-1s reduce systemic inflammation and cytokines.This isn't for everyone; some people have seen no benefit.Not everyone tolerates these drugs; side effects can occur.ZepBound was actually going to be cheaper for me than WeGoovy.Get it prescribed to you and monitored by a healthcare provider.I'm very excited to continue using ZepBound and my weight loss journey.GLP-1s may offer a powerful new clue in treating long COVID.We deserve answers about our health.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E17: "Medical Gaslighting & Long COVID"Keywords: medical gaslighting, gaslighting, Long COVID, chronic illness, BIPOC, LGBTQIA, mental healthPlease share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E16: "Lonely, Isolated, Invisible -- Coping with Loneliness in Long COVID & Chronic Illness"Keywords: loneliness, isolation, invisible, lonely, Long COVID, chronic illnessPlease share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E15: "Which Came First? Depression in Chronic Illness vs. Depression Causing Chronic Illness"Keywords: long COVID, depression, chronic illness, mental health, medical care, trauma-informed therapy, patient advocacy, integrated care, emotional suffering, physical symptomsSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the intricate relationship between chronic illness and depression. She explores how depression can arise as a response to chronic illness and how it can also precede or contribute to chronic conditions. Katherine emphasizes the importance of recognizing both physical and emotional suffering, advocating for integrated care, and validating patients' experiences to improve outcomes in the medical system.Takeaways:Depression and chronic illness often go hand in hand.The direction of depression matters in chronic illness.Situational or reactive depression is a normal response to chronic suffering.Long-term untreated depression can increase inflammation and disrupt recovery.Mental health and physical health are deeply connected.Validation and community support are crucial for those suffering.Integrated care is essential for treating chronic illness and mental health.Patients should be heard and their stories validated.Misdiagnosis can lead to devastating consequences for patients.Understanding the relationship between depression and chronic illness can guide recovery.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E14: "Parenting wth Long COVID"Keywords: Long COVID, parenting, chronic illness, emotional presence, support, guilt, flexible scheduling, mental health, caregiver, family dynamicsSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the unique challenges of parenting while living with Long COVID. She shares her personal experiences and insights on navigating the emotional and physical toll of chronic illness on family life. The conversation covers themes of guilt, the importance of emotional presence, finding support, and embracing the reality of parenting with limited energy. Katherine emphasizes that parents are doing their best and that their love for their children remains strong, even in difficult times.TakeawaysParenting with Long COVID presents unique challenges.Feelings of guilt are common among parents with chronic illness.Emotional presence is more important than physical activity.Finding support is essential for managing parenting responsibilities.Flexible scheduling can help bridge the energy gap.It's okay to ask for help without feeling ashamed.Doing less does not equate to loving less.Children need to understand illness in age-appropriate ways.Simple rituals can strengthen family bonds.You are enough as a parent, even on tough days.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E1: "But You look So Well" (+Weight Mgmt & SGB)Keywords: Long COVID, health management, weight loss, community support, treatment options, personal experiences, wedding reflections, coping strategies, mental health, wellnessSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences attending a wedding while managing long COVID symptoms. She discusses the challenges of social events, the importance of pacing, and the misconceptions people have about long COVID. Katherine also talks about her health management strategies, including weight loss efforts and the impact of medications on her appetite. She explores treatment options like the stellate ganglion block and emphasizes the importance of community support in navigating the long COVID journey.Takeaways:​Attending social events can be challenging with long COVID.​Pacing oneself is crucial during exertion to avoid post-exertional malaise.​Misconceptions about long COVID can lead to frustrating interactions.​Weight management is a significant concern for those with long COVID.​Medications can affect appetite and weight loss efforts.​Community support is vital for those dealing with long COVID.​Sharing experiences with others can provide hope and understanding.​Cold water therapy may help alleviate some symptoms.​It's important to communicate the realities of long COVID to others.​Self-esteem can be impacted by physical health challenges.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E13: "Active Rest vs True Rest"Summary: In this episode of Long Covid Real Talk, Katherine Marie shares the difference between true rest and active rest. True rest can prevent PEM while active rest can cause PEM. Recommendation from a fellow Long Hauler: USE A WEIGHTED BLANKET to get deeper rest/sleep!Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E12: "When Rest is Medicine - Avoiding the Crash Before It Starts"Keywords: Long COVID, rest, post-exertional malaise, pacing tips, health, healing, energy management, neuroscience, immune system, mental healthSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the critical importance of rest for individuals living with long COVID. She explains the difference between active rest and true rest, emphasizing the biological reasons behind the need for adequate rest. Katherine provides practical pacing tips to help manage energy levels and prevent crashes, ultimately reframing rest as a vital component of healing.Takeaways:Rest is not just slowing down; it's essential for recovery.Post-exertional malaise (PEM) is a hallmark of long COVID.Mitochondrial dysfunction affects energy production in long COVID.Even mild exertion can trigger a fight or flight response.Neuroinflammation can lead to cognitive crashes.Exertion can cause immune system overreactions and flares.Using a heart rate monitor can help manage activity levels.Building a 'rest nest' can enhance true rest.Scheduling rest after activities is crucial for energy management.Rest should be viewed as a radical necessary act of healing.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E11: "Strategies for Managing Social Gatherings "Keywords: Long COVID, social gatherings, wedding experience, coping strategies, acceptance, hearing difficulties, energy management, social anxiety, personal reflections, health challengesSummary: In this episode of Long Covid Real Talk, Katherine Marie shares her experiences attending a family wedding while managing the challenges of Long COVID. She discusses the strategies she employed to navigate social situations, the difficulties she faced with hearing and energy levels, and the importance of acceptance in her journey. Katherine reflects on her interactions during the wedding and a birthday celebration, emphasizing the need for self-compassion and practical strategies for coping with social gatherings.Takeaways:I used a wheelchair at the airport to minimize effort.The wedding was beautiful, but I struggled with hearing.Forgetting my earplugs made the reception challenging.Social interactions can be draining with Long COVID.I felt embarrassed and frustrated at the reception.We had to leave early, which made me sad.I experienced tremors, which was a new symptom.Acceptance of my current reality is important.I appreciate the small victories in my health journey.Planning ahead for social events can help manage energy.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E10: Recommendation FatigueKeywords: Long COVID, recommendation fatigue, medical advice, personal experiences, hope, health challenges, ME-CFS, lifestyle changes, patient experiences, chronic illnessSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the concept of recommendation fatigue, a feeling many long COVID patients experience due to the overwhelming amount of advice and recommendations they receive. She shares her frustrations with medical professionals who often lack understanding of long COVID and the impact of their suggestions. Katherine emphasizes the importance of recognizing the individuality of long COVID experiences and the challenges of navigating various treatments and lifestyle changes. Despite the difficulties, she encourages listeners to maintain hope and continue seeking solutions that work for them.Takeaways:Recommendation fatigue is a common experience for long COVID patients.Many healthcare providers lack understanding of long COVID.Exercise recommendations can be harmful for those with post-exertional malaise.Dietary suggestions often lack solid evidence for long COVID.Patients feel pressured to try every recommendation they receive.Long COVID affects multiple bodily systems, complicating treatment.It's challenging to find effective solutions amidst overwhelming advice.Personal experiences with treatments can vary widely among individuals.Maintaining hope is crucial despite the challenges of long COVID.Listeners are encouraged to share their experiences and recommendations. :)Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E9: The Impact of Long COVID on Daily Life (w/ Valarie) -- Part 2Keywords: chronic illness, heart health, Ehlers-Danlos syndrome, workplace injury, legal battles, self-advocacy, community support, coping mechanisms, fatigue management, resilienceSummary: In this conversation, Valarie shares her harrowing journey through a series of health crises, including a heart condition and chronic illnesses like Ehlers-Danlos syndrome. She discusses the challenges of navigating the healthcare system, the impact of workplace injuries, and the emotional toll of feeling dismissed by medical professionals. Valarie emphasizes the importance of self-advocacy, community support, and learning to pace oneself in the face of chronic fatigue. Her story highlights the resilience of those living with invisible illnesses and the hope that can be found in shared experiences.Takeaways:Valarie experienced a heart rate of over 200 beats per minute due to SVT.She was diagnosed with POTS and began treatment for her condition.Valarie faced significant challenges at work due to her health issues.She was fired from her job after a work-related injury.Valarie discovered she has Ehlers-Danlos syndrome after years of unexplained symptoms.She emphasizes the importance of self-advocacy in healthcare.Valarie discusses the emotional impact of chronic illness and isolation.She highlights the need for community support and shared experiences.Valarie learned to pace herself and manage her energy levels better.She stresses the importance of recognizing one's own value beyond work.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E8: The Impact of Long COVID on Daily Life (w/ Valarie) -- Part 1Keywords: Long COVID, health challenges, personal story, resilience, community support, fatigue, sensory overstimulation, mental health, recovery journey, chronic illnessSummary: In this conversation, Valarie shares her profound journey with long COVID, detailing her life before the illness, the acute infection, and the ongoing challenges she faces. She reflects on her previous energy levels, the impact of fatigue, and the struggle to navigate daily life with long COVID symptoms. Valarie emphasizes the importance of community support and understanding in her journey, as well as the emotional toll of feeling isolated and disconnected from her body.Takeaways:Valarie was a creative and active person before long COVID.She experienced significant fatigue and health challenges post-COVID.The acute COVID infection was severe, leading to long-lasting symptoms.Valarie's understanding of fatigue has deepened since her illness.She has struggled with sensory overstimulation and mental health issues.Community support has been crucial for Valarie during her recovery.Valarie has faced multiple health setbacks since her initial COVID infection.She emphasizes the importance of self-compassion in her journey.Valarie's experience highlights the complexities of long COVID.She continues to seek understanding and support for her symptoms.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E7: "Do You Have Urinary Symptoms Related To Long COVID?"Keywords: Long COVID, urinary symptoms, kidney stones, health updates, chronic fatigue, bladder issues, patient experience, healthcare, symptom management, urologySummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal experiences with new urinary symptoms related to long COVID, including peeing blood and urinary urgency. She discusses her medical journey, including consultations, tests for kidney stones, and the impact of these symptoms on her daily life. Katherine reflects on the ongoing nature of her symptoms and the importance of sharing experiences with others who may be facing similar challenges.Takeaways:Katherine discusses her new urinary symptoms related to long COVID.She experienced peeing blood and urinary urgency.A visit to urgent care led to a diagnosis of a UTI.Katherine shares her experience with a 24-hour urine test.She reflects on the possibility of kidney stones affecting her health.Katherine has never had urinary issues before long COVID.She mentions the delayed emptying of her bladder as a symptom.Katherine is scheduled for a urology consult to investigate further.She encourages listeners to share their urinary symptoms experiences.Katherine expresses gratitude for listener support and feedback.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E6: "The Battle Of The Bulge: Weight Management with Long COVID"Keywords: Long Covid, weight management, obesity, health, medication, lifestyle changes, weight loss, personal experience, health challenges, mental healthSummary: In this episode of the Long Covid Real Talk podcast, Katherine Marie discusses her personal journey with weight management amidst the challenges of Long Covid. She shares her struggles with weight gain, the impact of medications, and her efforts to seek medical advice for weight loss treatments. Katherine explores various options, including medications like ZepBound and lifestyle changes, while also addressing the emotional aspects of her experience. She emphasizes the importance of community support and invites listeners to share their own experiences with weight management.Takeaways:Long Covid has led to significant weight gain for many individuals.Seeking medical advice can be a challenging process.Weight management often requires a combination of diet and medication.Personal experiences with weight loss medications vary widely.Community support is crucial for those facing weight management challenges.Lifestyle changes, such as using apps like Noom, can aid in tracking progress.Cold showers may have potential benefits for weight management.Understanding the side effects of medications is important before starting treatment.It's essential to communicate openly with healthcare providers about weight concerns.Sharing experiences can help individuals feel less alone in their struggles.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E5: "Getting The 'Proper Diagnosis'" (w/ Lesley)Keywords: Long COVID, health struggles, personal story, disability, mental health, coping strategies, diagnosis, support, advocacy, chronic illnessSummary: In this episode of Long Covid Real Talk, Katherine Marie speaks with Lesley, who shares her personal journey with Long COVID. Lesley discusses her active life before the illness, the onset of COVID-19, and the challenges she faced in navigating work and health care systems. She highlights the struggles of getting a proper diagnosis, the journey to obtaining long-term disability, and the various health complications she has encountered. Lesley also offers advice on coping strategies and reflects on the impact of Long COVID on her friendships and support systems.TakeawaysLesley was very active before Long COVID.The onset of COVID-19 was unexpected and severe.Navigating work while dealing with Long COVID was challenging.Getting a proper diagnosis took a long time.Long-term disability was a difficult journey.Health complications from Long COVID are varied and serious.Support from friends and family is crucial but can be complicated.Coping strategies include pacing and seeking help when needed.Lesley emphasizes the importance of advocacy for those with Long COVID.Friendships can change significantly due to health issues.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.