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What is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book. Find Josef Miller at: Instagram — Positivity Beats IBD: @positivity_beats_ibd Instagram — Josef Miller: @josefjm13 Book: The Purple Rose Book: The Axolotl That Lost Himself Connecting to Cure Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD143 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
What options are you wiling to try to manage your ulcerative colitis or Crohn’s disease? How about putting someone else’s stool into your own colon? Fecal microbiota transplants (FMTs) — using stool from a donor to repopulate bacteria in the colon — are being studied for use in treating inflammatory bowel disease (IBD). Filmmaker Saffron Cassady decided to try do-it-yourself FMT to treat her ulcerative colitis, using stool from the healthiest person she could find: her husband. The journey is captured in her film, Designer $hit, which explores both the science and potential behind FMT. Learn about why she decided to take a chance on FMT, how it has impacted her life, and where you can see Designer $hit.   Learn where you can attend a screening: https://designershit.eventive.org/schedule   Episode transcript and more information at: https://bit.ly/AIBD142   Find Saffron Cassaday and Designer $hit at: Web: Designer $hit Twitter: @Designer_Shit_ TikTok:  @designershitdocumentary YouTube: Designer $hit Facebook: @Designer Shit Instagram: @designershtdocumentary Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party, is from ©Cooney Studio.   These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
What do all the new oral drugs available for treating IBD have to do with military service? Being diagnosed with IBD might mean leaving the military for some service members. Part of the reason is that it’s not possible to be deployed while receiving a drug that’s an injection or an infusion. But when a medication works well and happens to be in pill form: that’s a game-changer. Dr Anish Patel, the Medical Director of the Inflammatory Bowel Disease Center at Brooke Army Medical Center gives an update on how IBD is treated in the military, what he sees on the horizon for IBD, and his best advice for every patient living with a chronic illness.     Episode transcript and more information at: https://bit.ly/AIBD141     Find Anish Patel, DO, LTC, FACG, FAGA at: Facebook: https://www.facebook.com/anish.patel.31392/ Facebook: https://www.facebook.com/profile.php?id=100089635157883 Instagram: https://www.instagram.com/anishpa81/ Twitter: https://twitter.com/FocusGI2022 LinkedIn: https://www.linkedin.com/in/anishpa-armyibd/ Web: https://www.focusgi.org/ Resources: Crohn’s and Colitis Foundation, Veterans with IBD: https://www.crohnscolitisfoundation.org/veterans Facebook Support Group for Veterans with IBD: https://www.facebook.com/groups/525843515658644 VA Podcast Network: https://news.va.gov/va-podcast-network/ My HealtheVet: https://www.myhealth.va.gov/mhv-portal-web/home Veterans Crisis Line: https://www.veteranscrisisline.net/ Research: Fragmented care and IBD: Outcomes in U.S. veterans: https://ihpi.umich.edu/news/fragmented-care-and-ibd-outcomes-us-veterans Irritable Bowel Syndrome in U.S. Veterans: https://www.verywellhealth.com/ibs-in-veterans-1944720 Kent KG. Prevalence of gastrointestinal disease in US Military Veterans under outpatient care at the Veterans Health Administration. SAGE Open Med. 2021;9:20503121211049112.  doi:10.1177/20503121211049112 https://pubmed.ncbi.nlm.nih.gov/34646564/ Bookwalter DB, Roenfeldt KA, LeardMann CA, Kong SY, Riddle MS, Rull RP. Posttraumatic stress disorder and risk of selected autoimmune diseases among US military personnel. BMC Psychiatry. 2020;20(1):23. doi:10.1186/s12888-020-2432-9 https://pubmed.ncbi.nlm.nih.gov/31941473/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Sound engineering courtesy Mac Cooney: Facebook: https://www.facebook.com/maccooneycomposer Instagram: https://www.instagram.com/maccooneycomposer/ "IBD Dance Party" Single: https://maccooney.bandcamp.com/track/ibd-dance-party-single ©Cooney Studio: http://cooneystudio.com/
Learning to Accept IBD

Learning to Accept IBD

2023-10-2428:46

Being diagnosed with a chronic condition is a major adjustment. Digestive conditions like IBD (Crohn’s disease and ulcerative colitis) wind up affecting every part of our lives. Learning to accept the ways in which the disease affects life can be helpful. But it’s important to make the distinction between acceptance and complacency. Maalvika Bhuvansunder, a young adult patient living with Crohn’s disease, uses her experiences to help bring the concept of acceptance into focus for other people who are living with a chronic condition.   Concepts discussed on this episode: What Is a Bowel Obstruction?: https://www.verywellhealth.com/what-is-a-bowel-obstruction-1943010 Bowel Obstruction Surgery: Everything You Need to Know: https://www.verywellhealth.com/surgery-for-a-bowel-obstruction-796815 6 Types of Colectomy Surgery: https://www.verywellhealth.com/types-of-colectomy-surgery-1943059 Parasites - Amebiasis - Entamoeba histolytica Infection: https://www.cdc.gov/parasites/amebiasis/general-info.html Gargallo-Puyuelo CJ, Alfambra E, García-Erce JA, Gomollon F. Iron Treatment May Be Difficult in Inflammatory Diseases: Inflammatory Bowel Disease as a Paradigm. Nutrients. 2018;10(12):1959. Published 2018 Dec 11. doi:10.3390/nu10121959 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316243/   Episode transcript and more information at: https://bit.ly/AIBD140   Find Maalvika Bhuvansunder at: Adventure and Travel with Chronic Illness: https://youtu.be/yw1KNhSyVLg LinkedIn: http://linkedin.com/in/maalvika-bhuvansunder Instagram: https://www.instagram.com/maalvika_bhuvansunder Web: https://www.ccyanetwork.org/fellow-projects Find Amber J Tresca: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Sound engineering courtesy Mac Cooney: https://www.facebook.com/maccooneycomposer "IBD Dance Party" Single: https://maccooney.bandcamp.com/track/ibd-dance-party-single ©Cooney Studio: http://cooneystudio.com/   These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
IBD and Menopause

IBD and Menopause

2023-10-1714:46

Menopause is a topic that's not well understood in general and there's even less information when it comes to menopause and inflammatory bowel disease (IBD, Crohn’s disease and ulcerative colitis). October is World menopause Awareness Month. World Menopause Day is on October 18 every year. The purpose of the day is to raise awareness of menopause and the support options available for improving health and well being. Learn more about how IBD may affect perimenopause and menopause, as well as the reverse.   Concepts discussed on this episode: World Menopause Day: https://www.imsociety.org/education/world-menopause-day/ The North American Menopause Society: https://www.menopause.org/home Menopause and IBD: What a Gastroenterologist Wants You to Know: https://gastrogirl.com/menopause-and-ibd/ Living Well with IBD: Women's Health and IBD: https://www.youtube.com/watch?v=sWcQsiQDvKk Can You Treat Menopause Symptoms With Over-the-Counter Medications: https://www.goodrx.com/conditions/menopause/over-the-counter-relief-options Maya Minding Menopause: A 4-Part Series: https://mayafellernutrition.com/maya-minding-menopause/ Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD139   Sources: 1. Rolston VS, Boroujerdi L, Long MD, et al. The influence of hormonal fluctuation on inflammatory bowel disease symptom severity—a cross-sectional cohort study. Inflamm Bowel Dis. 2018;24:387–393. doi:10.1093/ibd/izx004 2. Lichtarowicz A, Norman C, Calcraft B, Morris JS, Rhodes J, Mayberry J. A study of the menopause, smoking, and contraception in women with Crohn's disease. Quarterly Journal of Medicine. 1989;72:623–631. 3. Kane SV, Reddy D. Hormonal replacement therapy after menopause is protective of disease activity in women with inflammatory bowel disease. Am J Gastroenterol. 2008;103:1193–1196. doi:10.1111/j.1572-0241.2007.01700.x 4. “The 2022 Hormone Therapy Position Statement of The North American Menopause Society” Advisory Panel. The 2022 hormone therapy position statement of The North American Menopause Society. Menopause. 2022;29(7):767-794. doi:10.1097/GME.0000000000002028 5. Lungaro L, Costanzini A, Manza F, et al. Impact of Female Gender in Inflammatory Bowel Diseases: A Narrative Review. J Pers Med. 2023;13(2):165. Published 2023 Jan 17. doi:10.3390/jpm13020165 6. Lewandowski K, Kaniewska M, Więcek M, et al. Risk Factors for Osteoporosis among Patients with Inflammatory Bowel Disease-Do We Already Know Everything?. Nutrients. 2023;15(5):1151. Published 2023 Feb 24. doi:10.3390/nu15051151 7. Schüle S, Rossel JB, Frey D, et al. Widely differing screening and treatment practice for osteoporosis in patients with inflammatory bowel diseases in the Swiss IBD cohort study. Medicine (Baltimore). 2017;96(22):e6788. doi:10.1097/MD.0000000000006788 8. Hidalgo DF, Boonpheng B, Phemister J, Hidalgo J, Young M. Inflammatory bowel disease and risk of osteoporotic fractures: A meta-analysis. Cureus. 2019;11:e5810. doi:10.7759/cureus.5810 9. Palomba S, Manguso F, Orio F Jr, et al. Effectiveness of risedronate in osteoporotic postmenopausal women with inflammatory bowel disease: a prospective, parallel, open-label, two-year extension study. Menopause. 2008;15(4 Pt 1):730-736. doi:10.1097/gme.0b013e318159f190 Additional Sources: Gold EB. The timing of the age at which natural menopause occurs. Obstet Gynecol Clin North Am. 2011;38:425–440. doi:10.1016/j.ogc.2011.05.002 Sheth T, Pitchumoni CS, Das KM. Musculoskeletal manifestations in inflammatory bowel disease: a revisit in search of immunopathophysiological mechanisms. J Clin Gastroenterol. 2014;48:308–317. doi:10.1097/MCG.0000000000000067 Harbord M, Annese V, Vavricka SR, et al. The first European evidence-based consensus on extra-intestinal manifestations in inflammatory bowel disease. J Crohns Colitis. 2016;10:239–254. doi:10.1093/ecco-jcc/jjv213
Colon cancer is being diagnosed more frequently in younger people. It’s now recommended that most people get a screening colonoscopy at the age of 45. For people who  have a family history of colon cancer, the first screening should be when they are 10 years younger than the family member was when they were diagnosed.   My guest is my husband, Michael Tresca, who recently had a screening colonoscopy after turning 50. He details his experiences in using a newer prep and how he managed the process.    If there is a person in your life that is due for their screening, I hope you’ll share this with them. And if you’re someone who is involved in administering screening colonoscopies, I hope you’ll listen to get an unfiltered perspective.   Find Michael Tresca at World of Welstar: Twitter: @WorldofWelstar Instagram: @world_of_welstar Facebook: @worldofwelstar Patreon: https://www.patreon.com/talien   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD138   These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Diet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung disease, cancer, diabetes, arthritis, kidney disease, liver disease, and ulcers than do people without IBD.   For those reasons and more: thinking about diet and how it affects all these other body systems, as well as the IBD, is important.   To discuss how diet relates to IBD, Amber talks to Clemmie Oliver, IBD Specialist Registered Associate Nutritionist and Nutritional Therapist (MSc, ANutr, Dip ION, mBANT, CNHC). Clemmie shares her personal journey of living with ulcerative colitis from the age of 9, undergoing surgery, and ultimately receiving a j-pouch.   She covers the impact of her condition on her family, particularly her parents and siblings. Clemmie also emphasizes the importance of nutrition in maintaining health and how dietary choices can influence j-pouch function. She provides practical advice for navigating social situations, such as parties and work dinners, where dietary restrictions may apply. She encourages open communication with healthcare professionals and offers thoughts on adapting food textures to better suit those with stomas or internal pouches.   Find Clemmie Oliver and the Lifestyle Medicine Clinic Ltd at: Facebook: @nalmclinic Instagram: @clemmieolivernutrition Web: nalmclinic.com Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD137   These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.      
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. One of the barriers to addressing disparities is money. It's an unfortunate fact that the healthcare system in the United States is intertwined with money. In some cases, access to care and other equity issues might be solved by putting some funding towards the problems. That's why I asked my guests a really broad question: If you received grant money, where would you allocate it in order to address disparities? You'll hear from Dr Aline Charabaty, Melodie Narain-Blackwell, Dr Cedric Pulliam, Dr Fasika Shimeles Teferra, and Brooke Abbott to find out what this panel says about where we should be focusing our efforts in combating healthcare disparities in the IBD space. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
Healthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the Crazy Creole Mommy Chronicles and co-founder of IBDMoms helps illustrate the aspects of public policy that are important in achieving equity in healthcare. In this discussion you'll learn how lack of access to educational opportunities affects the healthcare space, how some provisions in the Affordable Care Act help reduce disparities, and why access to technology is an important part of healthcare. Find Brooke Abbott on her blog, Facebook, Twitter, and Instagram. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. IBD is still considered rare in some parts of the world, but incidence is increasing. Fasika Shimeles Teferra, MD of Ethiopia describes her journey to a diagnosis of Crohn’s disease. Being a medical doctor, she has been able to make connections in order to help other IBD patients in her country. Patients face stigma, less than optimal care, and a lack of educational resources for themselves and their friends and family members. Dr Teferra was helping patients as best she could but discovered she needed a bigger platform. She founded a nonprofit, Crohn’s and Colitis Ethiopia, in order to better support Ethiopian patients with IBD. Find Dr Teferra on LinkedIn and Twitter and Crohn’s and Colitis Ethiopia on Facebook and their web site. More about Dr Teferra and IBD in Ethiopia: Interview with Dr Teferra on Lights, Camera, Crohn's Inflammatory bowel disease: an emergent disease among Ethiopian Jews migrating to Israel Inflammatory bowel disease in Africa: what is the current state of knowledge? Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. What is it like to not have anyone on your medical team that looks like you or understands your concerns? The diversity of the human experience is often not reflected in the healthcare system. In fact, there's little research into some areas of IBD, including the experience of LGBTQIA+ patients. Dr Cedric Pulliam, Senior Public Health Advisor at the Centers for Disease Control and Prevention, had a long journey to a diagnosis of Crohn's disease, punctuated by less than helpful advice from specialists. His experiences as a public health advocate, a patient, and a gay male have brought him to be an open advocate for those in the LGBTQ community. Dr Pulliam has advice on how the IBD community can learn from other disease states in how to truly meet the needs of patients. Find Dr Pulliam on LinkedIn and Twitter. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Nutrition is a major component of managing digestive disease. Yet people living with Crohn's disease, ulcerative colitis, or indeterminate colitis may not be offered access to help managing their diet. Dr Selvi Vasudevan, founder of Dr Selvi's Keys to Ease Crohn's, discusses her Crohn's disease journey and how it led her to pursue the role diet and nutrition play in wellness as well as the cultural influence on our food choices. A child of immigrants from southern India to the United States, she is discovering how best to integrate family life, her culture, and her needs as a person with IBD. Find Dr Selvi on Facebook, Instagram, Twitter, and on DrSelvi.com. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions? Melodie Narain-Blackwell, founder of Color of Crohn's and Chronic Illness, discusses her Crohn's disease journey and how it led her to become a voice for the IBD community. She tells us why outreach to minority groups sometimes fails, how she approaches patient education, her ideas on giving patients improved access to care, and how motherhood affects her disease journey. Find Color of Crohn's and Chronic Illness at COCCI.org, Facebook, Twitter, and Instagram. Find Melodie Narain-Blackwell at Facebook, Twitter, and Instagram. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD. Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so many barriers for people of color in accessing IBD care? Dr Aline Charabaty, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital and founder of Monday Night IBD on Twitter discusses the scope of inequalities in research and access to care in IBD. What's more: she offers solutions that can be used to address disparities. Find Aline Charabaty, MD on Facebook, Twitter, Instagram, and at Monday Night IBD. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
Pregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the study and help the next generation of moms with IBD and their babies. Find the PIANO Study at: Twitter: @PIANOIBD Web: PIANOStudy.org   Find Uma Mahadevan, MD at: Twitter: @UmaMahadevanIBD LinkedIn: @uma-mahadevan-ibd Web: University of California San Francisco   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio LinkedIn: @macooney Theme music, IBD Dance Party, is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD136 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety during classes. She offers insights into providing options for different needs, making the yoga accessible for everyone. Gain valuable insights into the world of yoga, its benefits for chronic illness, and how to embark on your own yoga practice with confidence and guidance. Find Desiree (Schmidt) VanDaalwyk, NASM-CPT, FNS at: Facebook: @desiree.schmidt.566 LinkedIn: @Desiree VanDaalwyk Instagram: @desireevandaalwyk Radect Health: Desiree Schmidt   Find Dutchmen Kettlebells at: Facebook: @Dutchmenkettlebells Instagram: @dutchmenkettlebells Web: https://www.dutchmenkettlebells.com/   Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio.   Episode transcript and more information at: https://bit.ly/AIBD135 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Brad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end. Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are encouraged to get involved with the fun. Brad also shares his thoughts on how the gaming community helps people with IBD connect to form meaningful relationships. Find Brad Watson-Davelaar at: Facebook: @bwdphoto Facebook: @crohnsawarenessproject Twitter: @bwdphotocanada Instagram: @bwdphoto Find Gaming4Guts at: Facebook: @gaming4guts Twitter: @gaming4guts Instagram: @gaming4guts Web: www.gaming4guts.com Discord: https://discord.gg/BpXcmz7 About IBD Episode 83: The Streamers from Gaming4Guts Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD134 These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
When is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she has managed to build a fulfilling life despite the many challenges that come with living with a chronic illness. We also dive into April's new book "I Pooped My Pants", where she shares her story and those of 20 other IBD warriors who have bravely shared their experiences with living with the disease. April's book provides a refreshing and honest perspective on what it's like to live with IBD, and it's a must-read for anyone who wants to learn more about the disease and how it affects people on a daily basis. Tune in to hear April's inspiring story and learn more about living with a chronic illness, and how you can build a fulfilling life despite the challenges that may come your way. Find April Michelle Harris at: Web: "I Pooped My Pants" Web: VirtuallyAprilMichelle Instagram: @VirtuallyAprilMichelle Instagram: @IPoopedMyPantsBook Facebook: Virtually April Michelle Book: "I Pooped My Pants" at Amazon Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD133 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Going to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it’s difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best time is to use the restroom (a peetime) during a movie without missing any important scenes. The creator, Dan Gardner, discusses how he and his team choose the best times to use the restroom while still ensuring that users do not miss any critical moments in the film. Additionally, Gardner talks about the other features of the app, such as movie ratings and reviews, and the importance of understanding the needs of different demographic groups. Find RunPee at: Web: RunPee.com Twitter: @RunPee LinkedIn: @runpee RunPee Android: Android App Store RunPee iPhone: iPhone App Store Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD131 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
What happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition. Find Sari Grossman at: Twitter: @saribari99 Instagram: @saribari99 LinkedIn: @Sari Grossman Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD131 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Comments (1)

Josh Hann

Love the podcast! שאלוהים יברך אותך! 🙏

Mar 18th
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