Claim OwnershipBreaking it down - A multiple sclerosis podcast
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© 2025 Breaking it down - A multiple sclerosis podcast
Description
Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.
Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.
Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.
Listen now for helpful information on symptoms, treatments, updates and a whole lot more.
95 Episodes
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Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode of the MS Trust Podcast, we explore the MS Hug—one of the most confusing and uncomfortable symptoms of multiple sclerosis. From tight banding and rib cramps to stitch-like pain and breathlessness, we unpack what it feels like, why it happens, and how to manage it. Neurologist Kate Petheram joins us to explain the science behind the symptom, and we hear from people living with...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 If you live with multiple sclerosis and struggle to get a good night sleep, this episode is for you. We uncover the hidden impact of night-time MS symptoms—from nerve pain, spasms, and restless legs to bladder urgency, burning sensations, and cold feet—and explore why these issues often seem to worsen after dark. Featuring insights from Associate Professor Rod Middleton from the UK MS Regist...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Worried about falling or unsure what to do if you do fall? You're not alone. Falls are a common concern for people living with multiple sclerosis. In this episode, expert physio Hilary Gunn breaks down why people with MS are more prone to falling. Discover how to spot the early warning signs and learn what steps to take if a fall occurs. We also delve into simple, effective strategies to bu...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Relationships can be complicated, even at the best of times. When one partner is living with MS, it can bring a whole host of new challenges as well as opportunities for deeper connection. In this podcast, we explore the emotional and practical realities of supporting a partner with MS, and how couples can support each other through changing dynamics. Psychologist Dr Ashley Brown joins...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Spasticity and spasms are common MS symptoms that vary from person to person and can be challenging to understand and manage. In this episode, we explore how these symptoms can feel with the help of our MS community and what you can do about them. We asked MS specialist physiotherapist Wendy Hendrie to share her near 40 years of experience with us. We are very glad we di...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Talking about living with MS can be a tough thing to do, but open and honest conversations are vital in building understanding for the condition. In this special episode for MS Awareness Week 2025, we explore the power of MS conversations—why they matter and how they can make a difference. This MS Awareness Week, we're working with the MS Society, MS Together, MS-UK, Neuro Therapy Netw...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Have you been told "nothing can be done" to treat progressive MS? Then this is the episode for you. Join Nick and Helena as they debunk this myth with the expertise of neurologist Dr. Emma Tallantyre, exploring current medical and non-medical treatments, effective symptom management, and rehabilitation therapies. Plus, get the inside scoop on the MS Trust's new book, "Progression in MS...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this bonus episode, we share some people with MS journeys of coming to terms with a progressive MS diagnosis. Adam, who lives with secondary progressive MS, is joined by his wife and carer, Sharon. Together, they reflect on how they navigate the complexities of their shared experience, from the emotional challenges to the practical ways they've found balance and connection. Yv...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Receiving the news that your MS is progressing can be a life-altering moment. In this podcast episode, we explore the emotional impact of this change and the journey towards acceptance and adjustment. Helena and Nick are joined by Dr Angeliki Bogosian, a health psychologist specialising in MS, who shares insights on coping strategies, the importance of psychological support, and how mindfuln...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 From challenges to special moments: advanced MS comes with a whole heap of them both. Listen now to hear three different perspectives: a person living with advanced MS, a carer and a health professional. We’re tackling advanced MS in this podcast episode of ‘Breaking it down’. Disclaimer: we discuss some sensitive topics in our interviews, including difficult MS symptoms and death. We hear f...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Join us for a jargon busting, myth smashing podcast where we explore baffling multiple sclerosis terms and common misconceptions. Ever heard terms like PIRA, RAW, or smouldering MS that’ve left you scratching your head and asking for a translation to plain English? Better yet, have you been on the receiving end of a baffling tale involving one of the many MS myths out there? “My friend...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 What questions have the MS community been asking in 2024? We took to social media and analysed our helpline enquiries to find out. Dr Claire Winchester and Corinne from our helpline team take us through the topics and explore the available information, support and self-management strategies. Plus, we cover some of the more unusual things that you’ve been asking about, like tattoos, Botox and...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources. “It’s just really complicated. I hate having medical appointments because it’s so difficult to get to them.” - Antoinette Does this sound familiar?...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career? Then join us as we delve into the topic of MS at work. Hosts Nick and Helena explore the impact of Multiple Sclerosis in the workplace and share strategies for Bringing Your MS to Work. We have a jam-packed show with four fantastic guest...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 What is a driving assessment? Does your mind conjure up memories of your driving test? Do you see a 17-year-old version of yourself panicking and sweating? Well, the second part of our podcast series on driving and multiple sclerosis covers everything that you need to know. Occupational therapist, Wendy Valentine and driving assessor, James Hinkins take us through the roadmap on driving asse...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Driving when you live with MS might make you feel like you’re stuck at a red light. You might start to ask questions. Who do I need to tell about my diagnosis? Can I still drive to see my family and friends? What adaptions do I need? Well, our two-part podcast special should give you some answers and dispel a few myths. In part one, we’re joined by Claire Winchester, MS Trust Head of Info an...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 What should you eat when you live with MS? We come across this question a lot from the MS community. It’s not surprising considering how much conflicting information there is out there. That’s why we’re demystifying MS diets in our two-part podcast special. Episode one saw us catch up with Dr. Terry Wahls and Samantha Josephs (Overcoming MS) about their respective diets and lifestyle approac...
1Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Have you thought about making changes to your diet to help manage your MS? Maybe you’ve experimented with a few fad diets, but never quite found what works. Well, we know the feeling. The world of nutrition can be tricky – you’re not sure if you should be keto, vegan, paleo, carnivore or just straight up confuddled. Throw MS into the mix and all of a sudden, things can get even more confusin...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS when he was 12 years old. Find out about the challenges that he and his siblings faced, his mother’s MS journey and why he’s passionate about support...
Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis. Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare professionals, managing stress and more! We discuss the roles of neurologists and the tests you might go thr...
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I'm actually just a little over a year out from my own aHSCT transplant. It was done through the BEAT MS clinical trial here in the US.