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Kappa Kappa Cancer
Kappa Kappa CancerSubscribed: 640Played: 19,863
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© 2018
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Welcome to Kappa Kappa Cancer, hosted by Erin Cummings. This podcast was created by a cancer survivor for cancer survivors and cancer patients. She dives deep into what it's really like to go through treatment and isn't afraid to discuss what others won't tell you.
11 Episodes
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2Lymphedema can be one of the many long term effects and is often a painful condition that can also put a damper on your style. Erin's friends, Physical Therapist Jennifer Nicolla Rai and fellow Breast CancerWarrior Sascha Cohen explain what it is and what you can do about it. And Sascha tells us how to get arrested for the right reason.
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Delaney Tabron and Matt Offord literally won the lottery - the green card lottery in New Zealand which allowed them to move to the United States. However, their luck seemed to run short when Delaney was diagnosed with HER2+ ER+ breast cancer. What followed was a test of their strength as a couple, as well as a roller coaster of challenges with America's health insurance system and having a support system on the other side of the globe.
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Cancer or no cancer, who doesn’t want better intimacy in their lives? Clinical Psychologist and Sex Therapist Dr Shannon Chavez lays it all out on the table. The time it takes for a woman to “get an erection,” men’s monthly hormone cycles, what actually happens when a woman goes through menopause (naturally and medically-induced), how to create new ways of finding pleasure, lube, toys, porn and fried chicken... NOTHING is off limits in this episode! ..*Trigger warning - reference to marital rape.
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Erin's first breast friend, Suzanne Asherson, has been dubbed the "Cancer Concierge," helping other breast cancer patients by sharing her experience being BRCA+, how to use cold caps and the joy and power of giving back with Cancer Free Generation.
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The increasing legalization of cannabis in countries around the globe has sparked renewed interest in the medicinal effects of this often misunderstood and stigmatized plant. Susan Marks, RN, BSN, PHN is a cannabis nurse and member of the American Cannabis Nurses Association and uses cannabis herself to manage her chronic condition. Nurse Susan explains how to read a label at the dispensary, what kinds of conditions cannabis can be used to treat and how patients can use cannabis as an essential tool in managing the side effects of traditional cancer treatment. Learn more about Nurse Susan and the how cannabis can help you at her web site: DearNurseSusan.com
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Kappa Kappa Cancer Hostess Erin Cummings flies solo in this episode to share her personal story of diagnosis - what motivated her early mammogram, how she found out that she had cancer and her surprising reaction to the news. She also dives into how she decided to share the news with the world and why this podcast isn’t just about healing others, but about healing herself as well.
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Why can’t I have sushi or manicures while on chemo? Erin’s lifeline for meds and frantic midnight emails during her treatment, her Nurse Practitioner Maddie Kuiper, visits the studio to walk us through a typical chemo session, how chemo meds vary and when you should/shouldn’t freak out and call your nurse.
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Three weeks after her bilateral mastectomy, Erin began physical therapy with Certified Lymphedema Therapist, Physical Therapist and Founder of #OurTribe, Jennifer Nicolla Rai. Jenni’s experience in the world of breast cancer as a physical therapist led her to create Hashtag Our Tribe, a space for young women with breast cancer. Kappa Kappa Cancer and #OurTribe work hand in hand to reach as many people as possible and help guide them through the scary and foreign world of breast cancer treatment, while also providing the emotional support that is difficult to find.
Visit KappaKappaCancer.com/Blog for more in-depth show notes on this and other episodes
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Erin welcomes two of her 'Breast Friends:" lawyer & mom of three Kaye Steinsapir and wife and artist Jennifer Lee Snowden to discuss their winding roads to diagnosis, their surgical decisions and what might happen in the ladies room during their lunch dates with one another. "Some of My 'Breast Friends' Have Cancer" episodes intend to welcome listeners into the conversation of cancer with real patients in order to open the community, offer personalized anecdotes and remind everyone that sometimes, it's okay to laugh at cancer. Visit KappaKappaCancer.com/Episodes for more in-depth show notes on this and other episodes.
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Erin’s 2016 mid-chemo blog about the rude, insensitive, careless or just plain incorrect things people said to her upon hearing of her diagnosis inspired this first episode. Her longtime friend, film pundit and host of The John Campea Show, John Campea, joined Erin to break down what not to say, as well as a few things you should say, when someone shares their bad news. Visit KappaKappaCancer.com/Episodes for more in-depth show notes on this and other episodes.
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Coming January 2019, actress and and breast cancer warrior Erin Cummings takes a raw and refreshing look at what it's really like to get a cancer diagnosis - especially for young women who are looking for answers to the burning questions like, "do cold caps actually work to save my hair?" and "if the cancer is in my breast, what's happening to my vagina right now?" This five-minute teaser gives listeners an insight into what to expect from future episodes. From how to respond to the stupid things people say when you have cancer to when it's a safe time to do a downward dog after surgery, Erin welcomes her favorite medical professionals and "breast friends" for advice, personal stories and laughs at the often absurd world of cancer treatment.
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if you had a favor and tell your gustes talk a little slower i will be so grateful. when english is not our first language, it's a little hard to understand the whole of your words. thank you
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I miss the show, hope you have more for us! It’s been a delight to hear a point of view that is similar to my own during this hellish year!
Thanks for this episode and for Jennifer and her recommendations, and resources to check out. I finally got to my PT and it's helping dramatically!
Cold capping is no joke but definitely worth it. I saved about 50% of my hair, not enough to not need a wig but enough so regrowth is going quicker. My costs were about $400 a month, plus $60 for dry ice each time, and shipping of the equipment back. I didn't have a consultant to help, but my mom, who was a rock star! :)
You had me at the etch-a-sketch reference. I just started balling thinking back to my own experience. Thanks for getting real with this shit. We need to do this and talk about real moments and emotions.
I just listened to this again. Reinforces need for PT. Love the lightheartedness and laughter. An uplifting podcast. Looking forward to next show keep up the good work 👏👏👏
Fantastic episode. More informative than the consultant at my PCP who specializes in MMJ. I will be following Nurse Susan on FB now!
OMG when I started listening, I just wanted to know what stupid shit not to say to someone with cancer and a week later I found a lump... now I'm 31 with a breast cancer diagnosis and I feel a little less lost. So many things I didn't think of, would never have known! Finding this podcast was great timing in my life.
This is such an informative and fun to listen to podcast. As a nurse I wish this podcast would be suggested to newly diagnosed breast cancer pt's by their Dr. It would also be helpful to pt's with other types of cancer. thanks Erin for thinking and implenting this podcast.
I was diagnosed on March 1st with HER2+ Breast Cancer. The last couple of months have been a roller coaster of emotions and for me, finding this station and listening to your voice and saying the things that have gone through my mind so far have been very empowering and it calms my anxiety a tiny bit. Thank you for sharing your journey and I’m excited to continue listening.
I myself survived cancer in 2012 🌺👍
Just like you, this is raw, real, uninhibited, yet classy as fuck! Awesome approach. I love this and you! More power to you and much success with this podcast! #warriorforlife
Oh MY!!! I wish I knew this information a long time ago to be able to be of more support for you during your Cancer journey. I sincerely hope many people find your podcast. It is so uplifting and I love hearing the laughter in all your voices, but I also hear the lingering concerns. Thank all of you for being so open and sharing your experiences.
FYI, Lupron is also prescribed for men undergoing prostate cancer treatment (dries up testosterone production)
I appreciate your transparency with your journey. I'm a grateful Cancer Survivor as well and I heard tons of stupid S*%&. I'm a black male and I didn't lose my hair while on chemo but it got really straight. Like I had a perm. People literally asked me, what kind of chemo I was on. "Why aren't you bald Charlie?" So while I was on chemo everyone thought I was either Puerto Rican or lying about chemo. So I got all the stupid questions that go along with that...haha....but overall I've been Cancer free for 25 years and I'm grateful.
Loved this episode and hope you have John C on the show again. Very insightful information and your suggestions will help all those who have friends and family diagnosed with Cancer and don't know what to say or do. Great show
This is the first podcast I am subscribing to.. You're an inspiration, a force and a straight up G!
I would like to know, how your dealing with the lack of sensation in your breasts? I had a bilateral mastectomy in February 2018, I opted for reconstruction surgery, but my nipples could not be saved. So I pretty much hate looking at myself and my boobs hurt all the time. Implants are uncomfortable, but I don't know if it's psychological or truly physical? I don't like letting my husband touch them or even see them.. Please lend some advice or even the support that I am not crazy and this happens.. thanks so much for your podcasts!!
Is there anything you can’t do? Actress, philanthropist, rockstar warrior superhero, smoke show, podcaster. Best of luck with this but you won’t need it, it’s brilliant and important.