DiscoverLong COVID Real Talk Podcast
Long COVID Real Talk Podcast

Long COVID Real Talk Podcast

Author: Katherine Marie

Subscribed: 16Played: 140
Share

Description

* Discusses how Long COVID affects the daily lives of the millions of people worldwide.
* For patients (and their friends/family) with:
* Long COVID/Post Acute Sequelae of COVID-19 (PASC)
* Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
* Postural Orthostatic Tachycardia Syndrome (POTS) & Dysautonomia
* Post-Exertional Malaise (PEM)

Listen to episodes here --> www.longcovidrealtalk.com
Email: longcovidrealtalk@gmail.com
139 Episodes
Reverse
S6E2: Mom Update + You're Not Alone If You Feel Like Crap Right NowALSO:*****Listen to Katherine Marie and Dr. Zeest Khan discuss how to get through the holidays on Long COVID, MD podcast! *****https://open.spotify.com/episode/2CUoMPRTfIWOHarxL4qj2T?si=nDX0XX_aS4qMDCAQ7re0BQSuicide and Crisis Lifeline: ⁠988⁠Emergency number: ⁠911⁠Keywords: Long COVID, grief, health struggles, family dynamics, holiday challengesSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal experiences with grief following the loss of her mother-in-law, her ongoing health struggles with long COVID, and the challenges of navigating family dynamics during the holiday season. She reflects on the emotional toll of loss, the support received from hospice care, and the impact of her health on daily life and family celebrations.Takeaways:Katherine reflects on the emotional impact of her mother-in-law's passing.The hospice care provided significant support during a difficult time.Returning from Ohio, Katherine experienced extreme fatigue and health fluctuations.Daily tasks can feel overwhelming due to long COVID symptoms.Katherine's family is adjusting holiday plans due to her husband's work schedule.She expresses the importance of celebrating Christmas early this year.Katherine shares the struggle of maintaining focus and energy for activities.The episode highlights the shared experience of feeling unwell during the holidays.Katherine emphasizes the need for self-care and understanding during tough times.She reassures listeners that they are not alone in their struggles.Please subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~From a listener, Gerben, from the Netherlands! Song for long covid patients:⁠https://youtu.be/Q269DaVpgEA⁠More:"In 2024 I made my video documentary about (having) #longcovid and loss. I am Gerben from the Netherlands, male, 53 years old. Got long-COVID in 2021 and not working. 3 kids.Loss of health, loss of work, loss of self-concept, loss of sharpness and confidence.All those things that people around a Post-COVID patient on first glance do not realise. I subtitled my personal video in 50 languages what will give patients, familly and doctors some "glasses" to look through. To understand it better.53 minutes, and several songs in between as pauses. Five parts, different losses."YouTube:  ⁠https://youtu.be/W_OxdC0t0Pk8⁠
S6E1: Mom Update + Grieving During The HolidaysALSO:*****Listen to Katherine Marie and Dr. Zeest Khan discuss how to get through the holidays on Long COVID, MD podcast! *****https://open.spotify.com/episode/2CUoMPRTfIWOHarxL4qj2T?si=nDX0XX_aS4qMDCAQ7re0BQSuicide and Crisis Lifeline: 988Emergency number: 911Keywords: Long COVID, grief, holidays, family health, coping strategies, anticipatory grief, complicated grief, mental health, emotional support, chronic illnessSummary: In this episode of Long COVID Real Talk, Katherine Marie shares a heartfelt update about her mother's and mother-in-law's health struggles and reflects on the complexities of grief, especially during the holiday season. She discusses various types of grief, including anticipatory and complicated grief, and offers insights into coping strategies. Katherine emphasizes the importance of support systems and encourages listeners to seek help when needed, particularly during emotionally challenging times.Takeaways:Katherine's mom is battling stage four lung cancer.Grief can manifest in various forms, including anticipatory grief.The holidays can intensify feelings of grief and loss.Understanding different types of grief can help in processing emotions.Coping with grief often requires time and support from others.Attack grief can occur unexpectedly, triggered by memories or reminders.It's important to acknowledge disenfranchised grief, which often goes unrecognized.Professional help may be necessary for complicated grief.Katherine shares personal experiences to illustrate her points.Listeners are encouraged to reach out for help during difficult times.Please subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. Reference:Ernstmeyer, K., & Christman, E. (Eds.). (2021). Grief and loss (Chap. 17) in Nursing fundamentals. Chippewa Valley Technical College. https://www.ncbi.nlm.nih.gov/books/NBK591827~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~From a listener, Gerben, from the Netherlands! Song for long covid patients:https://youtu.be/Q269DaVpgEAMore:"In 2024 I made my video documentary about (having) #longcovid and loss. I am Gerben from the Netherlands, male, 53 years old. Got long-COVID in 2021 and not working. 3 kids.Loss of health, loss of work, loss of self-concept, loss of sharpness and confidence.All those things that people around a Post-COVID patient on first glance do not realise. I subtitled my personal video in 50 languages what will give patients, familly and doctors some "glasses" to look through. To understand it better.53 minutes, and several songs in between as pauses. Five parts, different losses."YouTube:  https://youtu.be/W_OxdC0t0Pk8
S5E25: How To Make A Christmas Tree (With Long COVID)ALSO...*****Listen to Katherine Marie and Dr. Zeest Khan discuss how to make it through the holidays on Long COVID, MD podcast! *****https://open.spotify.com/episode/2CUoMPRTfIWOHarxL4qj2T?si=nDX0XX_aS4qMDCAQ7re0BQKeywords: Long Covid, Christmas tree, holiday preparation, chronic fatigue, artificial tree, Christmas decorations, pacing, holiday tips, Katherine Marie, Long Covid Real TalkSummary: In this episode of the Long Covid Real Talk podcast, Katherine Marie shares her personal experiences and tips for setting up a Christmas tree while managing long COVID and chronic fatigue. She discusses the challenges of holiday preparations, the benefits of using an artificial tree, and her unique approach to decorating with lights, ornaments, and tinsel. Katherine also reflects on the importance of pacing and seeking help when needed, offering practical advice for others in similar situations.Takeaways:Setting up a Christmas tree can be challenging with long COVID.Artificial trees offer control over shape and size, reducing energy use.Pacing and seeking help are crucial for holiday preparations.Katherine shares a unique method for decorating with lights and tinsel.Ornaments can serve as a personal history on the tree.Using non-breakable ornaments is practical for families with pets or children.Garlands and tinsel add visual interest to the tree.Katherine recommends allowing several days for tree setup to avoid fatigue.The episode emphasizes the importance of self-care during the holidays.Katherine encourages listeners to share their own holiday traditions.Please subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E24: Stress -- the Nemesis of WellnessKeywords: workers compensation, long COVID, health challenges, workplace reintegration, positivity, mental healthSummary: The conversation delves into the complexities of navigating workers' compensation while dealing with long COVID. The speaker shares personal experiences and insights on the challenges of returning to work, the impact of health on employment, and the importance of maintaining a positive outlook despite adversity.Takeaways: Navigating workers' compensation can be challenging for those with long COVID.Returning to work is not always feasible for individuals with long-term health issues.The speaker's primary workers' comp doctor advised against returning to work.Long COVID can significantly impact one's ability to work effectively.It's important to assess health status before considering work reintegration.Many individuals with long COVID do not have access to workers' compensation benefits.Finding positivity in difficult situations can be beneficial.Acknowledging the support of workers' comp can help in coping with health challenges.The speaker reflects on their progress and current limitations regarding work.Maintaining a positive mindset is crucial for mental health during recovery.Please subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E23: KPop, Sinus Rinses & Debt Letters Keywords: long COVID, health management, sinus rinses, financial challenges, coping strategies, community support, K-pop, mental healthSummary: In this episode, Katherine Marie shares her personal experiences with long COVID, discussing daily struggles, health management techniques like sinus rinses and Flonase, and the stress of dealing with debt letters. She emphasizes the importance of coping strategies, finding joy in small accomplishments, and the uplifting power of music and community support.Takeaways:Sinus rinses can help alleviate post-nasal drainage.Managing health issues requires consistent effort and care.Debt letters can be overwhelming and stressful.It's important to document financial hardships when seeking help.Coping strategies can include small daily accomplishments.Finding joy in music can uplift spirits during tough times.Community support is vital for mental health.Taking things 'inch by inch' can make tasks feel more manageable.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
BONUS EPISODE #10: My ME/CFS Clinic AppointmentKeywords: Long COVID, ME-CFS, medication, low dose naltrexone, GLP-1 agonist, health management, patient experience, community supportSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses her recent appointment at the Stanford ME-CFS clinic, focusing on medication management, personal experiences with long COVID, and the importance of community support. She shares insights on her medication adjustments, including low dose naltrexone and GLP-1 agonists, and reflects on her lifestyle changes and interactions with listeners.Takeaways:The importance of medication management in long COVID treatment.Adjusting dosages of low dose naltrexone can be challenging.Personal experiences with medications can vary widely among patients.Community support plays a crucial role in managing long COVID.Lifestyle adjustments, like cold water showers, can impact symptoms.Patient feedback is valuable for understanding treatment efficacy.Engaging with listeners fosters a sense of community.Anecdotal evidence is significant in the absence of large studies.Communication with healthcare providers is essential for effective treatment.Maintaining a balance between activity and rest is vital for recovery.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
Keywords: Long COVID, health challenges, personal reflections, financial struggles, workers' compensation, family focus, mental health, cold water therapy, symptoms, recoverySummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey with long COVID, discussing her health challenges, including urinary symptoms and the impact on her daily life. She reflects on her struggles with workers' compensation and the financial burdens that have arisen from her condition. Despite these challenges, she emphasizes the importance of focusing on her family and maintaining hope for the future.Takeaways:Katherine is focusing on sharing her personal experiences rather than trying to help others.She has restarted cold water therapy as part of her routine.Katherine is experiencing painful urinary symptoms related to long COVID.She has seen a urologist, and tests have ruled out serious conditions.Katherine is navigating the complexities of workers' compensation.She feels embarrassed about her struggles with daily activities.Financial hardships are exacerbated by her long COVID condition.Katherine is taking medication that helps with inflammation and symptoms.She is trying to maintain a positive outlook for the future.Katherine emphasizes the importance of focusing on her daughter during this time.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E21 What Stress Does To Your RecoveryPlease share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E20: A Surprise -- And Not The Good KindKeywords: Long COVID, workers' compensation, health challenges, disability retirement, mental health, personal stories, resilience, navigating bureaucracy, support systems, coping strategiesSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey navigating the complexities of the workers' compensation system while dealing with long COVID. She discusses the challenges of returning to work, the emotional toll of bureaucratic processes, and the importance of maintaining a positive outlook despite the difficulties. Katherine emphasizes the need for support and understanding from others as she balances her health and responsibilities.Takeaways:Katherine received a light duty job offer from HR.She feels frustrated with the workers' comp system.Maintaining a positive mindset is crucial for her.She is grateful for the support she has received.Katherine is concerned about the impact of returning to work.She emphasizes the importance of being honest about her health.Navigating bureaucracy can be emotionally taxing.Katherine reflects on the financial implications of her situation.She acknowledges the luck of having workers' comp benefits.Vulnerability and honesty help connect with others.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E19 When Getting Better Feels WorseKeywords: Long COVID, recovery, mental health, family dynamics, acceptance, uncertainty, personal growth, therapy, chronic illness, self-careSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey of navigating the complexities of recovery from long COVID. She discusses the emotional challenges of wanting to return to normal life while managing the realities of her health. Katherine reflects on the impact of her illness on her family, the uncertainty of her recovery timeline, and the importance of self-care and flexibility in her thinking. Through her candid reflections, she aims to connect with others facing similar struggles and emphasizes the need for understanding and support in the long COVID community.Takeaways:The beginning of recovery can be emotionally challenging.Anticipatory anxiety can hinder the desire to return to normalcy.Family dynamics are significantly affected by chronic illness.It's important to prioritize self-care during recovery.Uncertainty about recovery timelines can be distressing.Small improvements in health should be celebrated.Flexibility in thinking can ease the pressure of recovery expectations.Maintaining a balance between responsibilities and health is crucial.Therapy can provide valuable insights and coping strategies.Sharing experiences can foster connection and support within the community.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E18: "Hype or Hope: GLP-1 Agonists & Long COVID?"Keywords: GLP-1, Long Covid, ZepBound, Monjaro, Ozempic, weight loss, brain fog, inflammation, immune regulation, healthcareSummary: In this episode of Long Covid Real Talk, Katherine Marie discusses her experience with GLP-1 agonists, particularly ZepBound, and their potential benefits for individuals suffering from long COVID. She shares her personal journey, the science behind GLP-1s, and the importance of consulting healthcare providers before starting any new medication. Katherine emphasizes the need for more research and encourages listeners to stay informed and proactive about their health.Takeaways:I started ZepBound, which is a medication.More long haulers are reporting improvements in fog, inflammation, and mood.GLP-1s reduce systemic inflammation and cytokines.This isn't for everyone; some people have seen no benefit.Not everyone tolerates these drugs; side effects can occur.ZepBound was actually going to be cheaper for me than WeGoovy.Get it prescribed to you and monitored by a healthcare provider.I'm very excited to continue using ZepBound and my weight loss journey.GLP-1s may offer a powerful new clue in treating long COVID.We deserve answers about our health.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E17: "Medical Gaslighting & Long COVID"Keywords: medical gaslighting, gaslighting, Long COVID, chronic illness, BIPOC, LGBTQIA, mental healthPlease share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E16: "Lonely, Isolated, Invisible -- Coping with Loneliness in Long COVID & Chronic Illness"Keywords: loneliness, isolation, invisible, lonely, Long COVID, chronic illnessPlease share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E15: "Which Came First? Depression in Chronic Illness vs. Depression Causing Chronic Illness"Keywords: long COVID, depression, chronic illness, mental health, medical care, trauma-informed therapy, patient advocacy, integrated care, emotional suffering, physical symptomsSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the intricate relationship between chronic illness and depression. She explores how depression can arise as a response to chronic illness and how it can also precede or contribute to chronic conditions. Katherine emphasizes the importance of recognizing both physical and emotional suffering, advocating for integrated care, and validating patients' experiences to improve outcomes in the medical system.Takeaways:Depression and chronic illness often go hand in hand.The direction of depression matters in chronic illness.Situational or reactive depression is a normal response to chronic suffering.Long-term untreated depression can increase inflammation and disrupt recovery.Mental health and physical health are deeply connected.Validation and community support are crucial for those suffering.Integrated care is essential for treating chronic illness and mental health.Patients should be heard and their stories validated.Misdiagnosis can lead to devastating consequences for patients.Understanding the relationship between depression and chronic illness can guide recovery.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E14: "Parenting wth Long COVID"Keywords: Long COVID, parenting, chronic illness, emotional presence, support, guilt, flexible scheduling, mental health, caregiver, family dynamicsSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the unique challenges of parenting while living with Long COVID. She shares her personal experiences and insights on navigating the emotional and physical toll of chronic illness on family life. The conversation covers themes of guilt, the importance of emotional presence, finding support, and embracing the reality of parenting with limited energy. Katherine emphasizes that parents are doing their best and that their love for their children remains strong, even in difficult times.TakeawaysParenting with Long COVID presents unique challenges.Feelings of guilt are common among parents with chronic illness.Emotional presence is more important than physical activity.Finding support is essential for managing parenting responsibilities.Flexible scheduling can help bridge the energy gap.It's okay to ask for help without feeling ashamed.Doing less does not equate to loving less.Children need to understand illness in age-appropriate ways.Simple rituals can strengthen family bonds.You are enough as a parent, even on tough days.Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E1: "But You look So Well" (+Weight Mgmt & SGB)Keywords: Long COVID, health management, weight loss, community support, treatment options, personal experiences, wedding reflections, coping strategies, mental health, wellnessSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences attending a wedding while managing long COVID symptoms. She discusses the challenges of social events, the importance of pacing, and the misconceptions people have about long COVID. Katherine also talks about her health management strategies, including weight loss efforts and the impact of medications on her appetite. She explores treatment options like the stellate ganglion block and emphasizes the importance of community support in navigating the long COVID journey.Takeaways:​Attending social events can be challenging with long COVID.​Pacing oneself is crucial during exertion to avoid post-exertional malaise.​Misconceptions about long COVID can lead to frustrating interactions.​Weight management is a significant concern for those with long COVID.​Medications can affect appetite and weight loss efforts.​Community support is vital for those dealing with long COVID.​Sharing experiences with others can provide hope and understanding.​Cold water therapy may help alleviate some symptoms.​It's important to communicate the realities of long COVID to others.​Self-esteem can be impacted by physical health challenges.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E13: "Active Rest vs True Rest"Summary: In this episode of Long Covid Real Talk, Katherine Marie shares the difference between true rest and active rest. True rest can prevent PEM while active rest can cause PEM. Recommendation from a fellow Long Hauler: USE A WEIGHTED BLANKET to get deeper rest/sleep!Please share, subscribe, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E12: "When Rest is Medicine - Avoiding the Crash Before It Starts"Keywords: Long COVID, rest, post-exertional malaise, pacing tips, health, healing, energy management, neuroscience, immune system, mental healthSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the critical importance of rest for individuals living with long COVID. She explains the difference between active rest and true rest, emphasizing the biological reasons behind the need for adequate rest. Katherine provides practical pacing tips to help manage energy levels and prevent crashes, ultimately reframing rest as a vital component of healing.Takeaways:Rest is not just slowing down; it's essential for recovery.Post-exertional malaise (PEM) is a hallmark of long COVID.Mitochondrial dysfunction affects energy production in long COVID.Even mild exertion can trigger a fight or flight response.Neuroinflammation can lead to cognitive crashes.Exertion can cause immune system overreactions and flares.Using a heart rate monitor can help manage activity levels.Building a 'rest nest' can enhance true rest.Scheduling rest after activities is crucial for energy management.Rest should be viewed as a radical necessary act of healing.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E11: "Strategies for Managing Social Gatherings "Keywords: Long COVID, social gatherings, wedding experience, coping strategies, acceptance, hearing difficulties, energy management, social anxiety, personal reflections, health challengesSummary: In this episode of Long Covid Real Talk, Katherine Marie shares her experiences attending a family wedding while managing the challenges of Long COVID. She discusses the strategies she employed to navigate social situations, the difficulties she faced with hearing and energy levels, and the importance of acceptance in her journey. Katherine reflects on her interactions during the wedding and a birthday celebration, emphasizing the need for self-compassion and practical strategies for coping with social gatherings.Takeaways:I used a wheelchair at the airport to minimize effort.The wedding was beautiful, but I struggled with hearing.Forgetting my earplugs made the reception challenging.Social interactions can be draining with Long COVID.I felt embarrassed and frustrated at the reception.We had to leave early, which made me sad.I experienced tremors, which was a new symptom.Acceptance of my current reality is important.I appreciate the small victories in my health journey.Planning ahead for social events can help manage energy.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
S5E10: Recommendation FatigueKeywords: Long COVID, recommendation fatigue, medical advice, personal experiences, hope, health challenges, ME-CFS, lifestyle changes, patient experiences, chronic illnessSummary: In this episode of Long COVID Real Talk, Katherine Marie discusses the concept of recommendation fatigue, a feeling many long COVID patients experience due to the overwhelming amount of advice and recommendations they receive. She shares her frustrations with medical professionals who often lack understanding of long COVID and the impact of their suggestions. Katherine emphasizes the importance of recognizing the individuality of long COVID experiences and the challenges of navigating various treatments and lifestyle changes. Despite the difficulties, she encourages listeners to maintain hope and continue seeking solutions that work for them.Takeaways:Recommendation fatigue is a common experience for long COVID patients.Many healthcare providers lack understanding of long COVID.Exercise recommendations can be harmful for those with post-exertional malaise.Dietary suggestions often lack solid evidence for long COVID.Patients feel pressured to try every recommendation they receive.Long COVID affects multiple bodily systems, complicating treatment.It's challenging to find effective solutions amidst overwhelming advice.Personal experiences with treatments can vary widely among individuals.Maintaining hope is crucial despite the challenges of long COVID.Listeners are encouraged to share their experiences and recommendations. :)Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! I LOVE hearing from you! :)Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.
loading
Comments (2)

Baberutheless

thanks for doing this. I have horrible autonomic failure from COVID.

Jan 15th
Reply (1)