When a rare disease strikes, we might be to think only of the small populations of patients who are impacted by any single rare condition as stories too specific to be told. Taken in aggregate, rare disease has a sobering impact on the lived experiences of so many patients but also their families and care givers. There is a chorus of story tellers in rare disease who need to be heard, elevated and advocated for.In this episode of the Story Conversations podcast we talk with Pam Cusick, SVP of Strategy, Client Solutions and Patient Advocacy at Rare Patient Voice. RPV connects patients and family caregivers globally with all types of engagement opportunities, in market research, health economics outcomes and real-world evidence, user experience/human factors studies, and clinical trials. Pam shares poignant stories about passionate care givers who turn the tragedies of rare disease that impact their families into life defining initiatives to make a difference in the broader world. These stories reflect the community of patients, families and the thousands of advocacy and support groups RPV helps through their referral programs. Our conversation with Pam reveals how providing opportunities for patient and care giver stories to be heard drives action to tackle the economics and therapeutic implications of rare disease and provides a window into the realities of living with (not just dying from) rare conditions. Details on the work of Rare Patient Voice can be found here: http://www.rarepatientvoice.com Hosted on Acast. See acast.com/privacy for more information.
What happens in academic research when the subjects who are being researched are actually empowered to be active participants in the shape of the research process itself? Can the resulting story data yield insights with greater potential to stimulate discovery and change? Our guest this episode is Judy Pryor-Ramirez, Clinical Associate Professor of Public Service and Faculty Director, Executive MPA Program at the Robert F. Wagner Graduate School of Public Service at New York University.She shares with us her journey to developing academic research tools inspired by civil rights era theatrical techniques called “story circles”. These engagement methods were first established to spark dialogue around social injustice, voter disenfranchisement and segregation. She shares how this applying the “story circle” interview process can help academic social scientists reach deeper levels of understanding the dynamics of their research subjects’ lived experiences, especially in indigenous, Black and Latino communities.In our conversation, Judy references a book to which she contributed, on the origin and extension of the “story circles” interview process method and case studies of its use in social science research. She provides our listeners with the following information about its availability.Book title: Anti-colonial research praxis: Methods for knowledge justiceEdited by Caroline LenetteBook website: https://manchesteruniversitypress.co.uk/9781526177001/Discount code for 30% off on the publisher’s website: EVENT30 Hosted on Acast. See acast.com/privacy for more information.
Everywhere in the world non-profit organizations are challenged to pursue their mission, none more so than arts and cultural organizations like museums, ballet and opera companies, and theaters. Present circumstances with arts funding being cut exacerbates perennial struggles. Arts based non-profit organizations have always sought ways to grow their audiences efficiently, sell more tickets and build sustainable sources of funding. Now, this quest is mission critical. Our guest this episode is Eric Nelson, Vice President, Global Partnerships at TRG Arts, an international change agency committed to building thriving arts and cultural organizations. Experts in the arts sector for over 25 years, TRG Arts has earned a reputation by successfully shaping for-profit and non-profit business models to focus on consumer relationships, financial stability, organizational frameworks, and people-centric teams.In this episode, Eric talks about the need for non-profit arts and cultural organizations to be better storytellers as well as dispelling myths about growing, surviving and thriving in tumultuous times. To learn more about TRG Arts: http://www.trgarts.com/Hosted on Acast. See acast.com/privacy for more information. Hosted on Acast. See acast.com/privacy for more information.
Our guest this episode is Giovanni Boivin, the proprietor of The BookLoft, a 50-year-old independent bookstore in Great Barrington Massachusetts in the US. A “Storyteller turned Storyseller”, Gio (as he is known to staff and customers) turned a grade school love of story to a career that has manifested in creative writing and then relating the stories behind a tourist destination as a tour guide, at an historic house in the Berkshire region of Western Massachusetts he calls home. Since 2022 Gio has been the owner of The Bookloft, where he started as a clerk and wore many hats for years before becoming its steward and proprietor. The Bookloft serves locals and visitors as an alternative to the big box retailers who have rendered many indie bookstores extinct. But fear not if Western Mass is not on your itinerary anytime soon. Gio presides over a healthy online business as well, that will locate and ship titles domestically for your reading pleasure and gifting needs. https://www.thebookloft.com/ Hosted on Acast. See acast.com/privacy for more information.
Our guest this episode is Malu Halasa, a prolific and passionate observer of the Middle East through the lens of art and culture. Our conversation explores how she provides readers with a unique window into the changing mores of the region, having written and edited over 8 anthologies, and several novels and short stories of her own. Born in Oklahoma, to Jordanian and Filipino parents, raised in Ohio, a graduate of Barnard College, Columbia University, Malu now lives in London, where she is currently a Literary Editor at The Markaz Review. As a journalist, Malu’s contributions include music journalism for Rolling Stone, and writing for Huffington Post, and The Guardian. Anthologies she has edited include: · “Syria Speaks: Art and Culture from the Frontline”, · “Culture in Defiance: Continuing Traditions of Satire, Art and the Struggle for Freedom in Syria”,· “Transit Tehran: Young Iran and Its Inspirations”· “The Secret Life of Syrian Lingerie: Intimacy and Design”, · “Woman Life Freedom: Voices and Art from the Women’s Protests in Iran”, · And a new book coming out in January called “Sumud: A New Palestinian Reader” Her debut novel “Mother of all Pigs” is an epic Jordanian family saga chronicling the comedy and pathos of the patriarchy in decline. Hosted on Acast. See acast.com/privacy for more information.
What could be more theatrical than stories told in a courtroom? Especially those told to represent individuals who cannot afford adequate defense when accused of a crime?In this episode we chat with Matt Cleaver, Staff Attorney with Brooklyn Defender Services, a passionate public defender and a human rights activist. Trained in theater, experienced in arts administration and theater management, Matt pivoted to a career in law, to make a difference in lives of those disadvantaged in society. He brings a unique perspective to his role, representing and advocating for clients whose stories are often silenced by the nature of legal system. In our chat Matt shares anecdotes of using story to engage prosecutorial adversaries as collaborators, the need for specificity to amplify the stories of his clients, and the significance of language we use that can subtly impact the outcome of any defense. Hosted on Acast. See acast.com/privacy for more information.
In this episode we couldn’t be prouder to chat with jazz vocalist Tierney Sutton.A nine-time Grammy nominated artist, with an international performing career, Tierney is known for unique and inventive arrangements of jazz standards and other musical genres, a 20-year relationship with her band, and deft retellings of songs’ stories that we thought we knew. She is now performing own compositions in one of her most recent collaborations (or “consultations” as she explains on the podcast) with the San Gabriel 7 in the album and music video Good People. You can learn about all things Tierney, find a calendar of where she is performing, and links to listen to recordings her music and her on YouTube pages listed on her site: https://tierneysutton.com/If you don’t know her work there are so many stand outs we would recommend listening to, including albums featuring songs from artists as diverse as Joni Mitchell and Sting, and songs we know from movies. (She has great stories about the band working with Clint Eastwood to creating the soundtrack to the movie “Sully”.) Hosted on Acast. See acast.com/privacy for more information.
In Episode 3 of Season 3 we're thrilled to speak with author and marketing guru Mark Earls. Mark make the brain stuff simple to help brands and businesses understand how people behave.Follow Mark on LinkedIn https://www.linkedin.com/in/mark-earls-a393982/ or visit his website https://herdhq.com/ for more.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
In Episode 2 of Season 3 we have the privilege of chatting with the inspiring Mary Beech, CMO and Chief Transformation Officer of Scholastic Corporation, the renowned global children’s publisher, education and media company. It's hard not to think about “story” in the context of a 100 year old brand dedicated to publishing and distributing books that instill a love and passion for reading in kids of all ages. But Mary’s career journey before Scholastic, at companies like Ralph Lauren, Kate Spade and Disney, has included critical roles helping these organizations leverage their unique brand narratives.Follow her on Linked in https://www.linkedin.com/in/maryrennerbeech/ where she shares her views on how to be a successful CMO, the role of story to convey purpose as well as driving a P&L, and generally how to be a good and gracious leader. Hosted on Acast. See acast.com/privacy for more information.
Welcome to Season 3!In our first episode of Season 3 we speak with the wonderful Emily Weiner (co-founder and Artistic Director) and Susan Goodwillie (Managing Director) from Houses on the Moon theater company: https://housesonthemoon.orgWe hear all about how and why the company was formed and the philosophy behind their productions that amplify the stories of unheard voices.- including their latest show Hotel Happy, playing from Feb. 14th – March 3rd, 2024: https://housesonthemoon.org/production/hotel-happy/ Hosted on Acast. See acast.com/privacy for more information.
In this episode we speak with the wonderful Steve McCreary, General Manager of Collings Guitars. We explore why an authentic origin story is important, but also the power of association through storytellers. Who tells the story matters.Learn more about Collings.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
In this episode we speak with the fascinating Glenna Crooks. She's a Ph.D., a public health and policy strategist serving governments, companies, and organizations globally, helping them solve problems to improve health and well-being. And she tells a great story!https://glennacrooks.com/Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
In this week's episode, Susan and Simon talk to Tony Award winning producer Jane Dubin. Jane is a producer for shows like Peter and the Starcatcher and the Prom, and now the lead producer of The Village of Vale. In a previous life she worked in the world of finance. She is also the chair of Houses on the Moon theater company.In the episode we talk about the power of listening to get to the heart of a story, recognising good, and how to tell the story of the story.Learn more about Jane here.And explore the world of The Village of Vale more here.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
In this episode, Susan and Simon speak with Angel Bellon. Angel is a Senior Director of Insights & Cultural Intelligence at Paramount, and various bios describe him as hybrid strategist and cultural anthropologist. We talk about the importance of stories for marginalised communities and the dangers of taking a broad-strokes approach to people's experiences.Please note - all opinions in this episode are those of Angel Bellon, and not Paramount.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
In this week's episode we dive into the world of language and literature with the guru (midwife?) that is Roy Peter Clark. Roy is a master in the craft of writing. He has published twenty books, including the go-to reference book for writers - Writing Tools. He has also coached all levels of writer from school age children to Pulitzer Prize winners. There are so many great ideas and stories in this episode - we hope you enjoy!Learn more about Roy here. And grab a copy of his latest book Tell It Like It Is: A Guide to Clear and Honest Writing - UK and US.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
In this week's episode we have the pleasure of speaking with Georgia Stitt. Georgia is a composer, songwriter, musician, teacher... the list goes on. She is also the founder of an organisation called Maestra that champions women and non-binary composers working in theatre. It's a brilliant conversation about the power of music, collaboration, and getting specific in your storytelling.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative.And you can learn more about Georgia here. Hosted on Acast. See acast.com/privacy for more information.
We're taking a mid-season moment to pause and reflect on where story is at in 2023. It's fair to say that the business story world is being dominated by everyone's favorite topic: large language models/generative AI. Come, hear our thoughts!Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
On this episode of Story Conversations Susan and Simon chat with the hilarious Kate Feeney. Kate is a stand-up, a storyteller, and a people science consultant with Glint - a division of LinkedIn. We talk all things the language we use in our stories matters, holding an audience, and dealing with hecklers!Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative.And you can learn more about Kate here. Hosted on Acast. See acast.com/privacy for more information.
In this episode Susan and Simon talk story with professional storyteller and learning specialist Saul Jaffe. It's a fascinating, deep dive into the world of storytelling as an art. We uncover brilliant backstories, learning about removing the space between teller and audience, and the power of adaptation.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.
Susan and Simon talk story with the fantastic Micah Bucey. Micah is a spiritual leader in New York City. He shares his stories of growing up with his faith and living life as part of a queer community. As well as some fascinating insights into how stories work with faith, Micah shares his thoughts on how we can all work through difficult times.Story Conversations is produced by Iambic Creative and Griffin + Skeggs Collaborative. Hosted on Acast. See acast.com/privacy for more information.