Take Heart

In this episode, we sit down together to discuss joy and how we can capitalize on the moments that we have. We talk about adjusting our expectations, addressing past trauma, and embracing the fleeting nature of life to cultivate joy in the present moment. We discuss the struggle of feeling constantly on guard and the tendency to brace oneself for negative experiences, hindering the ability to be open to moments of joy. Lots of good takeaways to help you foster joy in your life!Key Momen...

Today, Sara talks with Dr Maureen Michele, physician, life coach, and author of the book Reclaiming Life: A Guide For Parents of Chronically Ill Children. We dive deep into the essential aspects of advocacy and emotional resilience, particularly in the context of parenting chronically ill children. We discussed the "4 C's" - consciousness, curiosity, commitment, and courage - and how these principles give us as caregivers and our children the tools we need to manage our thoughts and emotions....

There are emotional complexities and practical considerations of caring for children with disabilities or special needs during emergencies. In this episode, we discuss our conversations with our kids about emergencies, how we prepare for these inevitabilities, and how to recognize our personal needs to find emotional support during these crises. This episode will empower you to have a plan but prioritize your well-being while caring for all your children in these challenging times.Key Moments...

Carrie sat down with Kristin and Todd Evans to discuss their newly released book, How to Build a Thriving Marriage As You Care for Children with Disabilities. They talk about communication strategies for couples, how they manage stress, and the ongoing grief we experience as special needs parents. This episode offers practical advice and emotional support for couples facing similar challenges. Ep. 166; May 21, 2024Key Moments:[4:49] Lots of shame that we can feel as parents[11:14] Marria...

Join hosts Carrie, Sara, and Amy as we take a deep dive into the grief we face as mothers of children with disabilities. In this episode, we talk about how grief can feel like fear or anger, the need to be honest with ourselves, and the transformative nature of lament. This topic is something you may not know that you need until you allow yourself the space. Eps. 165: May 7, 2024Key Moments:[4:23] Guilt says “I didn’t do enough.”[7:29] My anger is actually grief [11:04} Why doesn’t ...

We are excited to share Amy’s conversation with Michele Cushatt, an author, communicator, and 3-time cancer survivor. Michele's latest book, "A Faith That Will Not Fail," offers practices to strengthen faith during challenging circumstances. Amy and Michele talk about acknowledging and dealing with trauma honestly, offering hope. They also discuss the concept of lament and the practice of relinquishment. Eps. 164 : April 16, 2024 Navigating Family Trauma: Finding Hope Amidst Hardshi...

Carrie, Amy, and Sara answer listener’s questions in this episode. Questions like, “How do you make good decisions regarding your child’s health?” and “What’s the appropriate amount of information you give when answering someone’s question about your child?” We have learned some real lessons over the years through trial and error and want to share with you some practical advice from our experiences.\Eps. 163Date: April 9, 2024Key Moments:[3:45] Choosing who you speak to about the hard t...

We are honored to welcome the inspiring Kelley Coleman to our podcast. Kelley shared her deeply personal journey as a parent of a child with multiple disabilities and how she ended up writing her book, "Everything No One Tells You About Parenting." Her authenticity and wisdom shine through in this interview. We discuss the lack of information parents are provided on diagnosis and how there’s not one specific place a parent can go to find the info and support they need. We talked about the cru...

As caregivers, we are well acquainted with transitions, and very much so in regard to our children. In this collaborative, Amy, Sara, and Carrie discuss the difficulties of life transitions as parents. They talk about their personal experiences, including making medical decisions and educational changes. The challenges of balancing autonomy and outside influences, going against medical recommendations, and seeking guidance for decisions are all discussed. We hope this episode offers valuable ...

Being a parent to a child with special needs comes with its own unique set of challenges, and being misunderstood is a chief issue. As Amy, Carrie, and Sara share their personal experiences and insights, they provide valuable guidance on responding with grace and resilience when faced with misunderstandings…even though they don’t do it perfectly every time. They discuss the balance of speaking the truth and advocating for their children without being intentionally hurtful to others and not fe...

Summary: Sara opens up about the challenges of feeling misunderstood as a mom and caregiver to a son with disabilities. Her top 5 instances when she has felt misunderstood touch on assumptions about strength, the perpetual feeling of needing to do more, finding a balance between identity and the constant impact of the diagnosis, and more. We know you’ll feel seen by listening to Sara’s honesty. So, grab a cup of coffee and prepare to dive into the heartfelt truth in this episode. Key Mom...

As parents of special needs kids, we have felt the weight of being misunderstood. In this episode, Carrie shares her experience with people who have made assumptions about us or our children and how it affects us as parents. She explains three things she wishes people understood about her parenting journey and three ways to handle ourselves when we have been misunderstood. Experiencing this life can be lonely, and this episode will give you some practical ways to manage the complex feelings t...

Do you ever feel like people just don't get it? We've all had those experiences - whether it's strangers at the grocery store or even our closest friends not understanding our journey as special needs parents. Amy shares some practical things you can do to bridge the divide and navigate the challenges of being misunderstood. We don’t want to stay isolated because of other people’s lack of awareness. Amy encourages us to continue the quest for connection.Key Moments:[2:25] Comparing a difficul...

Carrie welcomes her longtime friend, Erika Weise, a mother navigating the complexities of caring for a son with a trach and ventilator. Erika shares her personal insights on acceptance of this new life vs. living in denial, finding meaning in adversity, and creating a support network for families facing similar challenges. This down-to-earth discussion will inspire you with their stories of friendship and the unwavering belief that, even in the face of adversity, everything will be okay.Ep.15...

The Power of Perspective: Amy, Carrie, and Sara Share Their StoriesSummary: Amy, Carrie and Sara look back at their early years of parenting. They share the stories from the days of early diagnosis and what they thought back then…noting with humor how ridiculous it seemed back then. But looking at the early days has helped them appreciate how far they’ve come, giving them perspective. They discuss the concept of advocating for their child, the desire for control (even though...