This Crazy Celiac Life

I'm a mom on a mission. My son Joshua was diagnosed with celiac disease on Jan 23, 2019, after being sick for over 2 years. A blood test and endoscopy confirmed his diagnosis. In my research, I learned that the average time to diagnosis is 6-10 years in the U.S. We started a podcast This Crazy Celiac Life to help spread the word about CD and to support people with Celiac Disease and NCGS. Message us at: thiscrazyceliaclife@gmail.com anchor.fm/tccl/message

Have you ever been glutened so badly, that you were still sick 8 weeks later? Josh did last September. What are we doing about it?

Sometimes getting glutened means you are sick for months, just ask Joshua our 12-year-old. We had to put him on prescriptions for pain, have an ultrasound done, and are in the process of doing an elimination diet so he can take a SIBO test.  SIBO stands for Small bowl Intestinal Bacteria Overgrowth.  Bacteria that normally grow in other parts of the gut start growing in the small intestine. Someone who has SIBO experiences these symptoms *Loss of appetite * Nausea *Abdominal pain *Diarrhea * Bloating.  Diagnosis is made using an at-home breath test that is sent back to the lab for evaluation. Treatments include a course of antibiotics, cutting out sugar and processed foods, and taking probiotics. Have you had a SIBO test?  How did you resolve SIBO?  Listen in to find out what we're doing.   rachelle@thiscrazyceliaclife.com  anchor.fm/tccl/message

12-07
05:02

Today, we're talking to Dr. Tang. What are your chances for a false negative blood test for Celiac Disease? Also, Gluten Sensitivity is the center of the wheel.

Blood tests for celiac disease only test for 1 or 2 antigens, but the body can produce over 70 different antigens for Celiac Disease. Also, think of gluten sensitivity as a wheel with spokes coming off it like acne, PMS, Celiac disease, diabetes, gallstones, non-alcoholic liver disease, anxiety, depression, and insomnia. Please leave us a review at Apple Podcasts. Dr. Tang may be reached at wwwrejuvemedical.com. Thanks for listening and have a gluten-free day!

11-24
29:03

Did you know Celiac Disease is primarily Neurologic? I didn't! But it makes sense.

Because of neurological transmitters in your intestines, there is significant impact from intestinal damage and inflammation on the brain. Plus, leaky gut equals leaky blood brain barrier. This impacts all system and organs in the body, listen in to this weeks podcast with Nadine Grzeskowiak RN BSN CEN, and find out something new.

11-11
36:16

Revisiting an old "Hot Topic" Arsenic

In today's episode, we are going to talk about Arsenic. What is it? Why do we need to know about it? What can we do about it, if anything?

10-29
03:36

How hard can it be to get diagnosed with Celiac Disease?

Apparently, it can be quite difficult. Just ask Kim Klein. Her daughter Piper was diagnosed with Type 1 Diabetes when she was 2 years old. She has been screened yearly for Celiac Disease because of the relation between Diabetes 1 and Celiac. This year, the screening came back positive,  and they got an endoscopy that came back negative.  Listen in to find out the rest of the story.

10-22
29:49

Jen Jones Donatelli didn't know she had Celiac Disease...

Hello Friends,  In today's episode we get to talk to Jen, and hear her fantastic diagnosis story.  She also has pro tips on family gatherings and holidays, eating out and cookbooks.  Thanks for listening! and have a Gluten-Free day!

10-14
24:57

Talking about Nutrigenomics - What?

Hello Friends, Today we are talking with my special guest Kellie Lipsha. S he has some interesting information on nutrition and gene expression. What could this mean for Celiac Disease in the future? Listen in and tell me what you think. anchor.fm/tccl/message or thiscrazyceliaclife@gmail.com Thanks for listening! and have a gluten-free day!

10-07
30:18

Joshua is back! Today we talk about banana bread with Cricket Powder. Did he like it?

Of course he did!  It was delicious. Plus we talk about sun therapy.

09-29
09:22

Unbelievably Glutened by a Gluten-Free Labeled Product

Hello Friend, Joshua got glutened by a national brand that had Gluten-Free on the label.  I called the company. Listen in to find out what they said.

09-24
04:37

Joshua got glutened at home.

Listen in to find out what happened, and what we're doing about it. Message us at thiscrazyceliaclife@gmail.com

09-16
04:25

Is Celiac a real Disease?

Is Celiac a real Disease? Join Josh and me as we discuss this very real question we get asked sometimes. 

09-02
10:35

What do you mean we're going to try eating crickets?!

Joshua has celiac disease he cannot eat wheat, rye or barley, so we have to be very creative with getting him the nutrition he needs. In our exploration of nutrients, we've discovered bugs! Bugs are a great solution for him. Insects are protein that includes all nine essential  amino acids; they’re a prebiotic fiber, very  high in antioxidants, a perfect Omega 3:6  high in B12, Calcium,  Zinc, Iron, and more. Insects are also a very bio-available food  source. Try some from www.edibleinsects.com

08-29
08:02

Our 1st special guest!

Today we interviewed one of Joshua’s camp councilors - Clay Carlson!

08-14
10:07

Joshua is back from camp!

Tune in to find out how it went. Did he get glutened? Did he have fun? Did his team win? Will he go back next year? Join us to find out in this episode.

08-06
11:00

Cleaning and scrubbing the kitchen while Joshua is at camp!

While Joshua is away the cat will play! er- clean! Scrub & clean everything.

07-30
03:16

Joshua goes to camp!

Josh is so excited to head to camp! What I do to keep him safe at camp and ideas on how you can keep your kid safe too. Thanks for listening! and Have a Gluten Free Day!

07-22
05:16

What are the 3 biggest challenges for the mom of a celiac kid?

Today Joshua interviews me on the biggest challenges I face as the mom of a celiac kid. Again we talk about our favorite brands and also The Celiac Disease Foundation @ Celiac.org

07-15
16:17

The 11 year old is cooking & baking Gluten Free?

Joshua is learning to cook & bake Gluten Free food all by himself! If he can do it so can you!

07-09
08:24

Gluten Free at a friends house.

Today, Joshua talks about packing his lunch to go to a friends house. How he stays gluten free when visiting his friends.

07-01
11:51

Getting Glutened

Today we're having a discussion on a topic I don't really want to have.  Getting Glutened.  What happens to Joshua when he gets glutened, his immediate reactions and what he does about it. Do you have a story about getting glutened?  Were you at grandma's house, at your fav GF resturant, or at a friends? Or did you do it to yourself.  Tell us your story at anchor.fm/tccl/message or thiscrazyceliaclife@gmail.com Thanks! and have a Gluten Free Day!

06-25
09:42

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