Feeling This Life

This episode is a follow up to Lola’s Story with Meredith Howell that was released on September 4th. If you have not listened to Lola’s story we recommend you listen to that episode before listening to this episode. Jenny interviews Rita DeVore. Rita is mother to Meredith and grandmother to Lola. Rita is also the Special Projects & Volunteer Coordinator at VIPS.  Rita tells us about her relationship with Lola, how she supports her family and encourages other grandparents to get involved in the lives of their grandchildren no matter how difficult the situation. Dr. Cathy, Jenny & Paige reflect on the need families have for this special kind of support. Paige includes some great ideas on how to be involved with your grandchildren whether you live next door or across the country.     In Lola’s story Meredith discusses creating the NR2F1 Foundation with a group of other mothers. For more information on the NR2F1 Foundation visit their website: https://nr2f1.org/        Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw      Make a Donation to-   VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495   Anchor Center: https://www.anchorcenter.org/get-involved/donate/      Get in touch with us!   Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife   Email: feelingthislife@vips.org   Jenny: jcastenir@vips.org   Paige: pmaynard@vips.org   Dr. Cathy: csmyth@anchorcenter.org   www.anchorcenter.org   www.vips.org    

Cathy interviews Catarina Rivera, public speaker and disability and education inclusion advocate. Catarina, who has retinitis pigmentosa, has worn hearing aids from a young age and was diagnosed with a progressive vision disability at 17 years old.  Paige, Jenny, and Cathy consider how knowing what is available and having a choice about it is both inclusion and self-care.  They consider the positive impact of considering your strengths and how accidental accessibility makes life easier.  Catarina’s Socials:   Instagram: http://instagram.com/blindishlatina  X: http://twitter.com/catarinarivera  Facebook: http://www.facebook.com/blindishlatina  Linkedin: http://www.linkedin.com/in/catarinarivera  YouTube: https://www.youtube.com/@CatarinaRivera  Website: www.catarinarivera.com    Mentioned in today’s episode:   Haben: The Deafblind Woman Who Conquered Harvard Law, by Haben Girma, with a forward by Stephen Curry: https://habengirma.com/book/   Navigating Blindness: https://www.instagram.com/navigatingblindness?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==  Prevail and Braille Mama: https://www.instagram.com/prevailandbraillemama?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==  Crip Camp documentary: https://www.youtube.com/watch?v=OFS8SpwioZ4&pp=ygUJY3JpcCBjYW1w  Book: Demystifying Disability, by Emily Ladau: https://www.amazon.com/Demystifying-Disability-What-Know-Ally/dp/1984858971/ref=sr_1_1?hvadid=676936614912&hvdev=c&hvlocphy=9014255&hvnetw=g&hvqmt=e&hvrand=12604771403547326959&hvtargid=kwd-1990405576204&hydadcr=22167_13517494&keywords=demystify+disability&qid=1707748629&sr=8-1  Book: Disability Visability, by Alice Wong: https://disabilityvisibilityproject.com/book/dv/    Bret Dahmke Memorial Scholarship, a $500 scholarship that assists a Kentucky family of a child with a visual impairment to attend a local or national conference that is related to blindness/low vision.: https://vips.org/bret-dahmke-scholarship/      Please give us your feedback using this survey link: ⁠https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw⁠      Make a Donation to-   VIPS: ⁠https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495⁠   Anchor Center: ⁠https://www.anchorcenter.org/get-involved/donate/⁠     Get in touch with us!   Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife   Email: ⁠feelingthislife@vips.org⁠   ⁠www.anchorcenter.org⁠   ⁠www.vips.org⁠ 

Paige speaks with Sarah, Mom to Max, about caring for herself, for Max, and for her relationship with her husband, Garrett. Max is a young adult who has CHARGE syndrome and is deafblind. Over the years, Sarah and Garrett have grown closer together in their love for one another, and Sarah shares her advice for healthy relationships, including when to say "yes", and when to say "no". Cathy, Paige, and Jenny discuss the encouraging statistics surrounding marriages of parents of children with disabilities, and Jenny shares her own relationship successes. **Intimacy is briefly discussed from 30:00-32:00** Article by Robert Naseef, Ph.D. and Brian Freeman, Ph.D.: Maintaining+a+Marriage.pdf Sarah's YouTube channel: https://www.youtube.com/@sarahcawthon7511 Please give us your feedback using this survey link: ⁠https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw⁠      Make a Donation to-   VIPS: ⁠https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495⁠   Anchor Center: ⁠https://www.anchorcenter.org/get-involved/donate/⁠   Get in touch with us!   Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife   Email: ⁠feelingthislife@vips.org⁠   Jenny: ⁠jcastenir@vips.org⁠   Paige: ⁠pmaynard@vips.org⁠   Cathy: ⁠csmyth@anchorcenter.org⁠   ⁠www.anchorcenter.org⁠   ⁠www.vips.org⁠ 

Paige interviews Ashley Reynolds and Brian Runyon, both graduates of VIPS. Ashley and Brian share what self-care means to them and their favorite ways to care for themselves. Ashley shares encouraging words for families of young children with vision loss.   Paige, Jenny, and Cathy reflect on how technology skills learned in the classroom can help children with blindness and low vision access activities they like to do.   Ashley and Brian's YouTube channel: https://www.youtube.com/@MiracleMarshmallows    Please give us your feedback using this survey link: ⁠https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw⁠      Make a Donation to-   VIPS: ⁠https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495⁠   Anchor Center: ⁠https://www.anchorcenter.org/get-involved/donate/⁠   Get in touch with us!   Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife   Email: ⁠feelingthislife@vips.org⁠   Jenny: ⁠jcastenir@vips.org⁠   Paige: ⁠pmaynard@vips.org⁠   Cathy: ⁠csmyth@anchorcenter.org⁠   ⁠www.anchorcenter.org⁠   ⁠www.vips.org⁠   

This season the Feeling This Life team read the book Thunder Dog by Michael Hingson. Thunder Dog is a New York Times bestseller telling the true story of a blind man, his guide dog, and the triumph of trust. The book tells the story of Mr. Hingson’s life and how he and his guide dog, Roselle, escaped the Twin Towers on 9/11. In this episode Paige, Jenny and Dr. Cathy will share their thoughts on the book focusing on what stood out to them the most including how Mr. Hingson was raised and the courageous story he shares. Dr. Cathy discusses research and a brief history of visual impairments and how society and medical advancements have changed since the 1950’s. Thunder Dog can be purchased on Amazon using the link below or wherever books are sold. It is also available as an Audible Audiobook. https://www.amazon.com/s?k=thunder+dog&crid=3OONMJP3852D8&sprefix=thunder+dog%2Caps%2C137&ref=nb_sb_noss_1   Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw    Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/  Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org     

Jenny interviews Amy Nichols, Amy is a teacher of the Visually Impaired at VIPS and has been in the field of education for over 30 years. Amy encourages families to concentrate on what their children can do and celebrate those milestones. She reminds us not to compare our child to others. Amy shares her own struggles as a parent and what helped her through the challenging times. Paige, Jenny and Cathy reflect on how encouraging Amy is and how important it is to focus on what we can do.   Amy mentioned CVI Now Perkins School for the blind and recommends it as a resources for families you can learn more at https://www.perkins.org/cvi-now/  https://www.perkins.org/cvi-now/  Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw  Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org     

Dr. Cathy interviews Ali Huckins a Developmental Psychology Specialist, Licensed Professional Counselor and Board Certified Behavior Analyst.  Ali and Cathy talk about the importance of self-care in children and adults. Ali encourages listeners to find creative ways to incorporate self-care and celebrate what you achieve, reminding us that your self-care can look different than others. Dr. Cathy shares how she has changed her mind set to incorporate self-care. Cathy, Jenny and Paige reflect on how freeing it is to choose your own self-care.   Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw    Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org 

Jenny interviews Meredith Howell. Meredith is the Director of Development at VIPS and the mom of Lola, a former VIPS student. Meredith tells Lola’s story, sharing how far Lola has come and what her and her family have learned along the way. Paige, Cathy and Jenny reflect on the ways the Howell family has worked to set Lola up for success even when the unknown was scary.  Paige shares her memories of Lola as a toddler.   Meredith discusses creating the NR2F1 Foundation with a group of other mothers. For more information on the NR2F1 Foundation visit their website: https://nr2f1.org/   Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw    Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org 

Our focus for season 3 is self-care! Give yourself a little self-care by listening with us on the first Monday of the month starting September 5! This season's book club: Thunder Dog: The True Story of a Blind Man, His Guide Dog, and the Triumph of Trust by Michael Hingson https://a.co/d/1Y6O7q1 Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw    Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org

Thank you so much for listening to season 2 of Feeling This Life! In season 3, we will be focusing on self-care and bringing you stories from families who have children with visual impairments and from adults who have visual impairments. We will explore their daily lives and hopes and dreams for the future. Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw  Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org         

The team discusses why our little ones need evaluations, considering the benefits of understanding your child’s strengths and areas for growth and needed support. They talk about the difference between evaluations and assessments, and many types of each in terms of developmental skills and vision specific. Dr. Cathy, Jenny, and Paige also share what can be frustrating about evaluations and assessments. Jenny and Paige use a few minutes to vent about their frustrations and Cathy shares some encouraging words.       Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw  Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org 

Jenny interviews Wendy Fagan, director of Envision Blind Sports. Wendy shares her expertise in helping children with blindness and visual impairment to actively participate in sports. Afterward, Jenny, Paige, and Dr. Cathy reflect about building a foundation for a young child to succeed in sports, games, and recreation as they grow and develop. Jenny explains how her daughter uses a “tapper” during swim meets.    Picture of Wendy Fagan: Wendy Pic.jpeg    Envision camp flyer: Envision Camp Flyer- 2023.pdf     What is camp? what is camp.pdf    https://www.envisionblindsports.org/    Making Sports Accessible for Children and Teens Who Are Blind or Low Vision:  https://familyconnect.org/blog/familyconnect-a-parents-voice/making-sports-accessible-for-children-and-teens-who-are-blind-or-visually-impaired/          Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw  Make a Donation to-  VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495  Anchor Center: https://www.anchorcenter.org/get-involved/donate/    Get in touch with us!  Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife  Email: feelingthislife@vips.org  Jenny: jcastenir@vips.org  Paige: pmaynard@vips.org  Dr. Cathy: csmyth@anchorcenter.org  www.anchorcenter.org  www.vips.org   

Have you ever felt confused, overwhelmed, or lost when it comes to the ins and outs of your child’s transition to school? This installment of Feeling This Life is for you!  Through this silly episode, Megan and Sonnie, both moms to preschoolers with visual impairments, go head-to-head to answer as many questions as they can about the Individuals with Disabilities Education Act (IDEA).  Kathy Mullen, director of education at VIPS and IDEA expert, shares everything a family needs to know to be empowered for the transition from early intervention to school based services. Resources discussed in today’s episode: Paige’s PowerPoint resource: Special Education Important Terms to Know & IDEA Statute.pptx Article: Your child’s rights: Important terms to know: https://www.understood.org/en/articles/your-childs-rights-important-terms-to-know Full IDEA statute: https://sites.ed.gov/idea/statuteregulations/ Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Dr. Cathy talks with Amanda, mom to Ava, about embracing life when parenting a child with complex needs. Amanda shares vast wisdom and perspective about what it means to embrace life as a parent and about how to help your child thrive.   Jenny, Paige, and Dr. Cathy then reflect about Amanda’s attitude and story, the impact of involving family in home visits and therapy, taking breaks, and not vacuuming for your home-based providers. International Foundation for CDLK5 Research: https://www.cdkl5.com/about-cdkl5/ Amanda Jaksha would like to share the following resources for parents learning about complex needs. Family friendly resources about infantile spasms: Https://infantilespasms.org/families/is-it-is Resources to learn more about AAC for children with brain-based visual impairment: Https://praacticalaac.org/tag/cvi/ https://communicationmatrix.org/Community/Posts/Content/15817 Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Juanita Miles, preschool director at VIPS, shares the story of how her vision has changed as she lost, gained, and then lost her sight.  She shares insights she gained along the way, opens up about how it felt to lose vision and how she accomplished her goals when she wasn’t sure she could.  Jenny, Paige, and Dr. Cathy reflect about Juanita’s resilience. Link to Juanita’s life hacks: https://vipsorg.sharepoint.com/:i:/s/FeelingThisLife/EWyyatlxPQBMvls1mt0vG2sBDqd-4iSy1xKXGoHOMHMjZg Accessible version of Juanita’s life hacks: https://vipsorg.sharepoint.com/:w:/s/FeelingThisLife/Eb19gjLTWN1DjzL_xpbyhJkBhgPuVUMBXMFZPITrOGErbg Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Jenny, Dr. Cathy, and Paige reflect on reading “For the Benefit of Those Who See”, by Rosemary Mahoney.  Topics that come up include learning about the world using all our senses and blind content creators.  Jenny touches on how the students at Braille Without Borders (the school where Mahoney teaches) validate her experiences. Purchase and learn more about “For the Benefit of Those Who See” book: https://www.rosemarymahoney.net/for-the-benefit-of-those-who-see Blindsight Documentary on Vimeo: https://vimeo.com/508621901 Video: A Journey from Germany to Kerala: Sabriye Tenberkenat TEDxTrivandrum: https://www.youtube.com/watch?v=yy4FvPAEtJ0 Book - “Echolocation and FlashSonar” by Daniel Kish and Jo Hook https://www.aph.org/product/echolocation-and-flashsonar/ Just a few blind content creators we follow: Molly Burke: https://www.mollyburkeofficial.com/ Lucy Edwards: https://www.lucyedwards.com/ Anthony Ferraro: https://asfvision.com/ Christine Ha: https://www.youtube.com/user/ChristineHaTube Dan Mancina: https://www.instagram.com/danthemancina/?hl=en James Rath: https://jamesrath.la/ Catarina Rivera: https://www.catarinarivera.com/ Sam Seavey: “The Blind Life”: https://www.youtube.com/c/TheBlindLife https://www.perkinselearning.org/technology/posts/popular-blind-youtubers Episode Transcript: s2e4_Book Talk transcript (1).txt Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Jenny interviews mom and physical therapist Jamie Shake, who is visually impaired.  Jamie shares how her visual impairment impacted her schooling, and how her vision is just a regular part of her day at work.  Jamie shares her love of mowing grass.  Jamie and Jenny talk about the use of a smartphone as a low vision device.  Paige, Jenny, and Dr. Cathy reflect on Jamie’s wisdom as they discuss smartphones for accessibility and their own lived experiences with advocacy. Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Episode transcript: s2e3 Jaime Shake transcript- Smyth edit.txt Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Dr. Cathy interviews Dr. Phangia “Nana” Dewald, an orientation and mobility specialist.  Cathy and Nana talk about the importance of orientation and mobility in a child’s early years and the impact that service can have on a child’s development.  Jenny reflects on her experience advocating for orientation and mobility services for her daughter, and how she felt as she spoke up.  Cathy, Jenny, and Paige then share their thoughts about how orientation and mobility, grief, and advocacy intersect. Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Jenny interviews Carrie Garnett, her daughter’s teacher of the visually impaired.  They discuss their experiences around confusion when a child is able to see something they “shouldn’t” be able to, and when a child struggles with seeing something they “should” be able to both at home and at school.  Paige, Dr. Cathy, and Jenny reflect about the factors that influence a child’s functional vision.  Jenny shares how her feelings of need for control have been impacted by being “stumped”. One of the things we can observe in young (and not so young) children is the presence of "visual fatigue". It is just one more hidden visual condition that affects individuals with visual impairment in their daily lives. As we learn more about how the brain works, scientists are starting to unravel the mystery of visual fatigue. Here is a link for understanding that research better: https://www.perkins.org/the-science-behind-visual-fatigue-and-cvi/ Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org

Season 2 episodes will be released the first Monday of each month at 7:00AM Eastern.  Please give us your feedback using this survey link: https://educationutah.co1.qualtrics.com/jfe/form/SV_39OmBvMih6MlgNw Purchase and learn more about “For the Benefit of Those Who See” book: https://www.rosemarymahoney.net/for-the-benefit-of-those-who-see Make a Donation to- VIPS: https://secure.vips.org/np/clients/vips/donation.jsp?forwardedFromSecureDomain=1&campaign=495 Anchor Center: https://www.anchorcenter.org/get-involved/donate/ Get in touch with us! Follow us on Facebook @Feelingthislifepodcast and Instagram @Feelingthislife Email: feelingthislife@vips.org Jenny: jcastenir@vips.org Paige: pmaynard@vips.org Dr. Cathy: csmyth@anchorcenter.org www.anchorcenter.org www.vips.org