14. When the Road is Rare: Molly Bell on Parenting Through Uncertainty
Update: 2025-07-06
Description
The Long Road - Episode 14
Guest - Molly Bell
Hosted by - Lisa McKelvey
In this episode, Molly Bell — a pharmacist, wife, and mother of two from Toowoomba, QLD chats about her family’s journey. Molly and Nathans youngest son, Alfie, was diagnosed with an extremely rare neuro deficiency disorder (PPP2R1A), which affects his gross motor skills and causes moderate intellectual disability.
Molly shares some of the challenges she has faced, of raising a child with additional needs, the uphill battle for services, education, support, and understanding in a system not built for rare.
Show Notes:
(1) It’s Cool to Talk Grief 2025 | Facebook (Long Luncheon)
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