#21 - Patti Demuri, Rare Disease Patient Advocate

Update: 2022-06-21

Description

In this episode our guest is Patti Demuri, a Rare Disease Patient Advocate & Educator.

We’ll be discussing:

Demuri's background and her path to becoming a Rare Disease Patient Advocate
What makes rare disease patients unique in how they interact with healthcare & clinicians.
The concept of medical trauma
How Telehealth can benefit rare disease patients

Links to Check Out:

LinkedIn: https://www.linkedin.com/in/pattidemuri/

Links to Check Out for Sam:

Website: https://www.telehealtheasy.com

Twitter https://twitter.com/samiamlip

LinkedIn: https://www.linkedin.com/in/samlippolis

Clubhouse: https://www.joinclubhouse.com/@samiamlip

Comments

In Channel

#21 - Patti Demuri, Rare Disease Patient Advocate

2022-06-2114:29

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#19 - Tim Bilbrey, President & Co-Founder at Recovery Plus USA

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#18 - Matt McBride, CEO and Co-Founder at Mend

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#17 - Dr. Kike Oduba, Founder & CEO at WellnessWits

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#16 - Dr. Sherie Friedrich, PsyD, Chief Psychology Officer at MediTelecare

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#15 - Shereese Maynard, Founder at Nostra Data and Bandia FiSH

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#14 - Dr. Matthew Sakumoto, Virtualist & Clinical Informatics Physician Champion at Sutter Health

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#13 - What’s most important for digital health companies? (featuring Dr. Ben Schwartz)

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#12 - A Conversation With Dr. Aditi Joshi, an Experienced Emergency Medicine Physician & Telehealth Expert

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#11 - A Conversation With Jeff Gamble PhD, Founder & CTO at Rezilient

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#9 - Can Payers and Providers be Friends?

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#8 - A Conversation With Samson Magid, Co-Founder & CEO at HealthSnap

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#7 - Part 2: What’s Your Health System's Digital Health Strategy?

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#6 - Part 1: What’s Your Health System's Digital Health Strategy?

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#5 - Are Health Systems Savvy Enough To Be Virtual First Partners?

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#4 - National Telehealth Provider Survey Analysis

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#3 - You’ve Got To Get Paid, Featuring Victoria Moll, CEO at Contempo Coding

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#2 - 3 Future Trends in Healthcare

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#21 - Patti Demuri, Rare Disease Patient Advocate

#box-pro-ellipsis-176629163387267{-webkit-line-clamp:2;}#21 - Patti Demuri, Rare Disease Patient Advocate

#21 - Patti Demuri, Rare Disease Patient Advocate

Slice of Healthcare LLC

#21 - Patti Demuri, Rare Disease Patient Advocate