Today I’m talking to Sarah Land, another wonderful person who is using her own lived experience to help others.

Until a short time ago, I hadn’t heard about Sarah, who is the founder of the Peeps H.I.E. Charity.

Now I seem to be hearing about her everywhere I go. Such is the nature of networking. And, very rewarding in the context of my strong belief that these inspirational stories need a much wider audience!

Thank you, Rachel Crook, (Episode 34) for introducing me to Sarah and to everyone driving positive change for young families.

Lemon lightbulbs 🍋💡🍋

• Sarah Land’s lived experience made her HIGHLY qualified to set up the Peeps H.I.E charity
• HIE - Hypoxic Ischemic Encephalopathy- what is it?
• Lived experience needs to be properly valued
• Healthcare professionals and parents need to work TOGETHER (the new professional panel will build on the successful parent panel
• Peer support is very important
• Each family’s experience is different - care needs to be personalised
• Some parents will be desperate to go home after a stay in neonatal unit; others will be terrified
• Going home with a new baby is tough at the test of times
• Parents can contact the charity when the time is right for them
• We need to ensure good work that relies strongly on individuals is sustainable
• Networking is strong – there are strong links to our Whose Shoes #FICare project
• The power of Twitter! Connect and join forces with other people with similar passions
• Getting the balance right - Family Integrated Care is the goal but make sure there is always proper support
• Prepare for going home, feeling empowered rather than under pressure
• Think differently – focus on improving lives rather than just measuring 'bed days' and financial outcomes
• Whose Shoes thinking - bring in more humanity!
• People need to feel free to laugh and enjoy life, even when things are difficult
• Listen to people and see them as individuals
• Let’s raise awareness of H.I.E! 

Links and resources

Find out more about: Peeps H.I.E charity 

Episode 13: Yvonne Newbold MBE – founder of Newbold Hope

Episode 34: Rachel Crook: caring for little ones, as a mum and a nurse!

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