An Inside Look (Part II) at DIPG, Childhood Brain Cancer with Wendy Fachon and Janet Demeter
Update: 2023-05-26
Description
Both advocates and moms share the parallel of their personal experiences with their sons who were both diagnosed with DIPG, with Wendy's son Neil Fachon diagnosed at age 19 in 2016, and Janet's son Jack Demeter diagnosed in 2012. A continuation of a deep conversation from last week, the two share their hope and inspiration for continued advocacy as well as some of their hard-fought successes in the field. Despite the growing attention to the pediatric brain cancer research space, nothing has to date changed for the average family with a child diagnosed with DIPG from the experience 60 years ago. The two friends discuss what they have done to survive and thrive in a relative vacuum and an at-times fractured community, how hope is indispensable when fear runs rampant, and how brilliant scientists like Stalislaw Burzynkski (Houston, TX) and Michelle Monje (Palo Alto, CA) and innovative, collaborative organizations like Children's Brain Tumor Network (CBTN) and the Pacific Pediatric Neuro-Oncology Consortium (PNOC) give thousands an extended license to believe there will be a cure for DIPG.
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