In honor of CMT Awareness Month, this episode is dedicated to helping listeners navigate the vast seas of Charcot-Marie-Tooth disease. As we sail through September, dubbed #CMTAM23, we're amplifying voices that echo the experiences, challenges, and hopes of over 3 million individuals affected by CMT worldwide. In this special compilation, we weave together the best of 'CMT 4 Me' to highlight both the scientific strides and the deeply personal tales of acceptance and resilience. It's more than just individual stories; it's a collective testament to the spirit of a community striving to spread awareness. So, whether you're familiar with CMT or hearing about this commonly inherited neurological disease for the first time, join us in making waves of change. And while you're at it, consider honoring a CMT star in your life by adding their name to the CMTA's virtual Sky of Fame, a luminous tribute to those navigating the challenges of CMT.

Guests Featured:

• Dr. Zuchner
• David Tannanbaum
• Arda Ozdemir
• Camilla Stivinson
• Bev and Frank Wurzel
• Aron Taylor
• Ashley McLeroy
• Dan and John Morgan
• Yohan Bouchard
• Dr. Glenn Pfeiffer

And More!

Episode Highlights:

• The promising landscape of gene therapies and what the future holds.
• Embracing and navigating the emotional journey post-CMT diagnosis.
• The importance and strength of community in the face of CMT.
• Stories of hope, acceptance, and the lessons life with CMT teaches us.
• The tireless advocacy efforts shaping a brighter future for those with CMT.

As we reflect on the stories and insights shared, it's evident that the CMT journey is one of challenges met with determination, heartaches soothed by community, and a collective drive to push forward. Together, we're not just raising awareness; we're building a brighter, more informed future.

Want to Share Your Story? Inspired by today's conversations? If you have your own CMT story to share please complete our interest form here to be considered to be a guest on CMT 4 Me.

Stay Connected: To dive deeper into the world of CMT and stay updated on future episodes, join our email community.

Behind-the-Scenes: For those curious about the candid moments and raw conversations behind each episode, don't miss our "Raw and Unedited" series on youtube here

Tell Us How You Navigate CMT!

Within the CMT community, every individual's journey is a testament to resilience and strength. How does one navigate the ups and downs of Charcot-Marie-Tooth disease? The podcast encourages listeners to dial in at (941) 233-5172 and share their strategies, experiences, and stories of navigating CMT. These shared moments have the potential to inspire, bring comfort, and foster deeper connections. Selected stories might even find their way into upcoming episodes, offering insights and encouragement to others. It's a collective effort, weaving together the voices of many into a tapestry of support and understanding. Share your voice and be part of this narrative. #CMT4Me #ShareYourStory

CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, inte

For more information about CMT and to support the CMTA, please visit www.cmtausa.org