Breaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome
Description
(4:12 ) 10,000 foot view of Cynthia’s story with Minimal Change Disease…
(5:11 ) An American nomad…
(7:40 ) A complicated medical history…
(11:01 ) Strong parents and a strong support system…
(14:11 ) “I don't ever remember a specific time of coming to that realization. It was woven into daily life. I never remember a time of not having Nephrotic Syndrome.”
(16:14 ) Various treatments during elementary years…
(20:34 ) The changes with Cellcept…
(24:25 ) Weaning off of Cellcept and hoping the disease would be just a pediatric condition…
(27:21 ) Pivoting her life and finding horses…
(30:42 ) “I was at the barn all the time. I went there every day after school. I was there all weekend. It really became the place that I just invested myself in, and could absorb, and be someone, at that barn.”
(35:21 ) Making healthy lifestyle choices that are Nephrotic Syndrome safe…
(37:54 ) “I think it's really important that as people have these conversations that we don't forget the siblings.”
(41:20 ) Separating Nephrotic Syndrome from identity…
(44:52 ) The ups and downs of Prednisone, and getting into remission…
(47:45 ) “At a very young age, when I started hearing doctors potentially tell me how this could limit my life I was just so determined that they were wrong.”
(50:12 ) Hard moments and the tool of therapy…
(54:39 ) What do you think contributed to your remission?
(56:47 ) A life experience that has strengthened and ignited…
(1:03:25 ) Advice from Cynthia…



