DiscoverThe Nephrotic Syndrome Foundation PodcastBreaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome
Breaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome

Breaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome

Update: 2021-03-11
Share

Description

(4:12 ) 10,000 foot view of Cynthia’s story with Minimal Change Disease…

(5:11 ) An American nomad…

(7:40 ) A complicated medical history…

(11:01 ) Strong parents and a strong support system…

(14:11 ) “I don't ever remember a specific time of coming to that realization. It was woven into daily life. I never remember a time of not having Nephrotic Syndrome.”

(16:14 ) Various treatments during elementary years…

(20:34 ) The changes with Cellcept…

(24:25 ) Weaning off of Cellcept and hoping the disease would be just a pediatric condition…

(27:21 ) Pivoting her life and finding horses…

(30:42 ) “I was at the barn all the time. I went there every day after school. I was there all weekend. It really became the place that I just invested myself in, and could absorb, and be someone, at that barn.”

(35:21 ) Making healthy lifestyle choices that are Nephrotic Syndrome safe…

(37:54 ) “I think it's really important that as people have these conversations that we don't forget the siblings.”

(41:20 ) Separating Nephrotic Syndrome from identity…

(44:52 ) The ups and downs of Prednisone, and getting into remission…

(47:45 ) “At a very young age, when I started hearing doctors potentially tell me how this could limit my life I was just so determined that they were wrong.”

(50:12 ) Hard moments and the tool of therapy…

(54:39 ) What do you think contributed to your remission?

(56:47 ) A life experience that has strengthened and ignited…

(1:03:25 ) Advice from Cynthia…

Comments 
00:00
00:00
x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Sleep Timer

Off

End of Episode

5 Minutes

10 Minutes

15 Minutes

30 Minutes

45 Minutes

60 Minutes

120 Minutes

Breaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome

Breaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome

Andrea Callaway, Jeremy Bedig, Cynthia Niemeyer