Care for a rare

Update: 2019-03-28

Description

In this episode of 1 in 20000 Avantika speaks to Mr. Prasanna Shirol, the founder of ORDI, a rare disease patient care and advocacy organization.

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In Channel

Advocating for a rare cause

2021-03-2422:14

What does a rare family look like?

2021-03-0126:15

Climbing the job ladder with a chronic rare illness

2021-02-1418:00

Learning the hard way

2021-01-1521:16

Quest for blood- How COVID-19 pandemic hurt children with thalassaemia

2020-12-3125:00

Breaking free from the emotional costs of a rare disease

2020-12-2423:30

The pandemic unravels India’s weak disability support system

2020-11-2524:30

Parenting a rare child

2020-10-2230:30

Why it is not easy to diagnose a rare disease

2020-09-2919:45

The impact of COVID-19 & lockdown on people with rare diseases

2020-09-1415:00

कोरोनावायरस से दुर्लभ रोगी कैसी बचें

2020-05-0605:00

Awaiting Change

2019-09-2738:30

A long wait

2019-08-2823:00

The Gene Story

2019-07-2932:44

A Father's Journey

2019-06-2836:17

An equal partner

2019-05-2824:30

Living Rare

2019-04-2818:32

Care for a rare

2019-03-2822:03

Introducing 1 in 20000

2019-02-2825:52

00:00

#box-pro-ellipsis-17572499769374{-webkit-line-clamp:2;}Care for a rare

Care for a rare

Suno India

Care for a rare