Community update with Emily Amerson
Description
There are so many things going on in our CTNNB1 community. Board member, Emily Amerson, discusses many things she has been working on and involved with. I don't think there is one thing this momma can't do. She has pushed us forward with our website and social media, and she's working on so many different projects and ideas- a welcome letter, brochure, Ciitizen, and Probably Genetic, just to name a few. You can definitely tell serving our CTNNB1 community is her new found passion and purpose, it's shining through with her work on the board. We are so blessed to have her as part of our team.
emily@curectnnb1.org
https://www.probablygenetic.com/
https://www.ciitizen.com/rarenetwork/CTNNB1Connect
https://www.curectnnb1.org/
#raredisease
#syndrome
United States
