DiscoverLife and ScienceDoing better where it counts: Bringing rare disease care to underserved populations
Doing better where it counts: Bringing rare disease care to underserved populations

Doing better where it counts: Bringing rare disease care to underserved populations

Update: 2022-08-29
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Description

We are on the brink of new solutions that include accessing specialized

care through telemedicine, diagnosis through mail-in specimens, and

computer-aided remote phenotyping. This webinar discusses how new

systems and technologies can close the chasm that prohibits those with

rare diseases living in underserved countries and communities from

getting critically needed care.




https://www.fondation-ipsen.org/webinar/webinar-bringing-rare-disease-care-to-underserved-populations/




with:


Consuelo Wilkins, M.D., MSCI (Vanderbilt University Medical Center, Nashville, TN)


Linda Goler Blount, M.P.H. (Black Women’s HealthImperative, Atlanta, GA)


Nakela L. Cook, M.D., M.P.H. (Patient-Centered Outcomes Research Institute (PCORI), Washington, DC)


Jamie Sullivan, M.P.H. (EveryLife Foundation, Washington, DC)


Sean Sanders, Ph.D. (Science/AAAS, Washington, DC; moderator)




This podcast is adapted from a webinar broadcast by Science magazine, with the sponsorship of Fondation Ipsen.




Hosted by Ausha. See ausha.co/privacy-policy for more information.

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Doing better where it counts: Bringing rare disease care to underserved populations

Doing better where it counts: Bringing rare disease care to underserved populations

Life and Science