Dr. Kristy Johnson - 2024 Grant Awardee for the PMSF Innovation Grant - Part 1
Description
Have you ever felt discouraged filling out clinical measures about your child? Do you wish a language measure better captured your child's unique way of communicating? Then this podcast episode is for you! Trust me.
In this episode of "The Phelan-McDermid Podcast: Sharing Research, Progress, and Hope", Dr. Lauren is talking to Dr. Kristy Johnson from Northeastern University, who received the 2024 PMSF Innovation Award for her project titled, "ROSCO: A Novel Virtual Natural Communication Paradigm for Individuals with PMS". Drs. Lauren and Kristy had such a good (and important!) conversation that we decided to split the episode in two parts.
In Part 1 's episode today, you will get to learn Dr. Kristy's unique pathway into Phelan-McDermid syndrome research and about the challenges with existing clinical measures in Phelan-McDermid syndrome.
And stay tuned for Part 2, dropping next week!
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