DiscoverWell Beyond Medicine: The Nemours Children's Health PodcastEp. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy
Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

Update: 2025-08-18
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Description

Tina Aswani-Omprakash began experiencing symptoms as a child – joint pain, eye inflammation and digestive issues – but no one connected them. Without a diagnosis, health insurance, or support due to the cultural stigma surrounding inflammatory bowel disease (IBD) and Crohn’s disease, Tina endured a long and painful journey to understand her own body.

Today, she’s a patient advocate, storyteller and CEO of the South Asian IBD Alliance (SAIA), using her lived experience to support others – especially young people and families – facing similar challenges.

Own Your Crohn’s
South Asian IBD Alliance (SAIA)

Guest:
Tina Aswani-Omprakash, MPH, CEO, South Asian IBD Alliance (SAIA)

Host/Producer: Carol Vassar


Views expressed by guests do not necessarily reflect the views of the host or management.

Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

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Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

Nemours Children's Health