Welcome to episode 069 of the Beyond the Diagnosis podcast.  In this episode, Deanna Fournier guest hosts
interviews with Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders, specifically adults. They discuss the recent expansion of the compassionate allowances list, which allows for expedited disability requests and provides access to benefits such as Medicaid and Medicare, eligibility criteria for applying for Social Security benefits, and the role of disability representatives. They also address the process of appealing denials and provide contact information for those seeking assistance.  With a series of questions posed by the histio community, we know this is an episode you will find extremely valuable!

Resources mentioned in the podcast:

 ·       Applying for Social Security Disability

·       Should I Quit My Job Before Applying for Disability?

·       Social Security Eligibility

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Music: “Heroes” by Noah Smith