"Rare disease research is shaping the way almost all biomedical research will be carried forward in the future." — Dr. Jack Faris

What does it take to make real progress in the fight against rare diseases? 

In this episode of PNRI: Rare Disease, Real Progress, PNRI CEO Jack Faris and his daughter and co-host, Anna Faris, reflect on the energy and discoveries presented at the 2025 Rare Disease Day Symposium.

Joined by special guest Dr. Vittorio Gallo, Chief Scientific Officer at Seattle Children’s Research Institute, they share pivotal moments, new therapeutic advances, and the collaborative spirit that defined the event.

You'll hear how recent innovations are changing lives—and why continued advocacy, collaboration, and investment are essential to sustaining this momentum.

In this episode:

• [0:47 ] Welcome to the Rare Disease Day Symposium
• [1:37 ] Why collaboration drives rare disease research
• [4:06 ] A look at the future; faster, more connected discovery
• [6:33 ] Dr. Vittorio Gallo on progress and partnerships
• [9:20 ] Success stories in rare disease treatment
• [11:48 ] Final thoughts and gratitude

About the Symposium: In honor of Rare Disease Day, on February 28, 2025, Pacific Northwest Research Institute proudly hosted a scientific symposium in partnership with Seattle Children’s Research Institute and with participation from the University of Washington. Together they celebrated the strength of Seattle’s rare disease research community–including scientists, clinicians, and patient advocates.

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This podcast is hosted by PNRI CEO Jack Faris and his daughter Anna Faris. 

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