Episode 46: Why Endometriosis Is Still Mismanaged & How We Can Do Better as Clinicians w Heather Guidone
Description
Heather Guidone joins us to help work through all of the noise surrounding endometrosis.
She the Program Director of the Center for Endometriosis Care and a Board Certified professional health Advocate. She has focused on 'bench to beltway to bedside' efforts in endometriosis research funding and facilitation, legislation and policy reform, education, advocacy and activism, patient-centric care, and more for over thirty years; importantly, she is also someone who has struggled with the disease.
What we will discuss:
-Why the "retrograde menstruation" theory falls short
-Why birth control, pregnancy, and hysterectomy aren't cures
-The key differences between ablation and excision surgery
-Why diagnosis requires skilled listening, imaging, and sometimes biopsy
-How trauma, chronic stress, and nervous system dysregulation can influence symptoms
-The critical role of patient autonomy, informed consent, and individualized care
-How to find a skilled excision surgeon and what questions to ask
-Non-surgical ways to manage endo symptoms (like PT, stress regulation, and nutrition)
Timeline:
00:00 Introduction to Endometriosis Mismanagement
00:28 Meet Heather Guidon: Advocate and Expert
00:59 Debunking Myths: Retrograde Menstruation and More
03:55 Understanding Endometriosis: Beyond Painful Periods
13:03 The Role of Trauma and Stress in Endometriosis
15:09 Patient-Centric Care and Informed Consent
28:18 Diagnosis and Treatment Options
40:05 Understanding Excision and Ablation
42:31 Challenges in Accessing Quality Care
46:09 Questions to Ask Your Provider
49:16 The Importance of Compassionate Care
54:05 Surgical and Non-Surgical Treatments
59:27 The Role of Hormonal Treatments
01:07:01 Endometriosis: A Multifactorial Approach
01:09:35 How to Reach Out for Help
01:13:40 Conclusion and Final Thoughts
You can learn more about Heather at:
https://www.centerforendo.com/
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