In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes guest Nancie Parker, a retired nurse who has firsthand experience with CBS. Nancie shares her journey of sudden vision loss due to aggressive glaucoma and her subsequent struggle with CBS. She discusses the challenges of coping with visual hallucinations, the importance of community support, and the role of advocacy in raising awareness about CBS. Nancie highlights her work with the CNIB in providing resources and support for individuals experiencing vision loss and CBS. This insightful conversation underscores the importance of acceptance, humor, and resilience in dealing with this condition.

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For help with CBS call 1-704-389-0160

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email garymcusick@icloud.com

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email judith@charlesbonnetsyndrome.uk.

For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email scot@charlesbonnetsyndrome.org

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