Episode 544 - LaRae Hacker
Update: 2025-10-28
Description
How TBX4Life Is Fueling a Global Collaboration
LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com @TBX4_Life
Comments
In Channel
Download from Google Play
Download from App Store
United States00:00
00:00
x
