In this bonus episode of the series, the project’s lived experience group, BUDDs, and the research team discuss co-producing the project, 'Sharing the diagnosis of dementia in the post-Covid clinic: patient and practitioner perspectives'. The team discuss the co-produced approach of the project, share their highlights of working together, and give some insight into the benefits and challenges of co-producing research.

Joining this episode are BUDD members, Louise, Margaret, Barry, Elaine and Claire, and researchers from the University of Edinburgh, Lindsay Kinnaird (also presenting), Denise Munro, Dr Tom Russ and Dr Rosie Ashworth. Dr Tom Russ is also an Old Age Psychiatrist based in Edinburgh, Director of the Alzheimer Scotland Dementia Research Centre, an Honorary Clinical Senior Lecturer at the University of Edinburgh and Research Champion for the NHS Scotland Neuroprogressive and Dementia Network. Dr Rosie Ashworth also works with NHS Scotland Neuroprogressive and Dementia Network as lead for Partners in Research and is experienced in co-producing research in collaboration with people with lived experience of dementia.

For a subtitled version of this episode please visit: https://media.ed.ac.uk/media/Episode+7A+The+Final+Tale/1_49u8d0z9

This episode is co-produced with the Better Understanding Dementia Diagnosis (BUDD) stakeholder advisory group and funded by Economic and Social Research Council as part of the UKRI's Rapid Response to Covid.

You can find out more about the research project at: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

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For dementia support services contact:

Alzheimer Scotland Dementia 24 hour Helpline: 0808 808 3000/ https://www.alzscot.org/findsupport 

Alzheimer Society Dementia Connect Support Helpline: 033301503456/ https://www.alzheimers.org.uk/getsupport 

MECOPP: https://www.mecopp.org.uk/contact-us 

Dementia UK: 0800888 6678/ https://www.dementiauk.org/

If you’re interested in getting involved in research please visit: https://www.joindementiaresearch.nihr.ac.uk/