I am joined in this episode by Robert Wilson Thomas to discuss his diverse perspectives of functional neurological disorder. This includes his experience as a patient, as narrated in his illness memoir FND: Lessons form a Rather Eventful Life, and his insights as an advocate for the disorder.

Our discussion covered the triggers and vulnerabilities that led to Robert’s FND, a theme that went back to his childhood and which covered the role of emotions. We also reviewed the manifestations of his FND, from seizures to gait difficulty and falls. We also reviewed the convoluted path he took to getting a diagnosis, and how the disorder has progressed over the years.

Also relevant is Robert’s exploration of the interventions that have been helpful, the unsatisfactory attitude of many in healthcare towards the disorder, and the prospects that research and better understanding are promising. The conversation also explored the importance of peer supports, and the prospects of the disease, and the impact of the disease on his career and relationships, and the stigma and myths that permeates society about FND.

We also reviewed Robert’s advocacy work for FND. Robert retired from formal employment in 2017, and since mid-2018, he has been a Director, Co-chair and Legal Advisor to FND Hope International, the global charity dedicated to support and advocate on behalf of people with FND, and their families.

Robert is Welsh by birth, but as he had lived in Ireland since 2001, he now tends to identify as Irish-Welsh although native Irish people still regard him as a ‘blow-in’. He is a practicing Buddhist, and has been a barrister since 1977, although his first degree was in chemical engineering. He describes himself as autistic, bipolar, diabetic, an alcoholic in recovery, vegetarian, and a cancer survivor. His latest book is titled A Box of Frogs: Dwells On and Delves into my Neurodivergent Nature.