DiscoverThe White Noise PodcastEpisode #9 Patient Centered View of Narcolepsy
Episode #9 Patient Centered View of Narcolepsy

Episode #9 Patient Centered View of Narcolepsy

Update: 2022-08-03
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Description

In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy. 


 


SHOW NOTES



  1. Introduction of Guest: (5:00 )

  2. Matt’s Best Advice (11:00 )

  3. Matt’s Role in the sleep community (12:40 )

  4. Matt’s symptoms onset (15:00 )

  5. Matt’s additional symptoms (19:00 )

  6. Matt’s onset of cataplexy (23:00 )

  7. Cataplexy triggers (24:45 )

  8. Delayed diagnosis: (27:00 )

  9. Nightmares and sleep paralysis onset (31:30 )

  10. One more question about sleep paralysis (34:15 )

  11. Partial cataplexy (37:50 )

  12. Diagnosis and Management: (39:00 )

  13. Pitolisant (43:45 )

  14. Strategic Napping (44:15 )

  15. Bitter Pills (45:15 )

  16. AASM revised Guidelines (47:22 )

  17. Sodium Oxybate and Cataplexy (49:00 )

  18. Finding a sleep physician to manage narcolepsy (55:00 )

  19. Sleep apnea (60:30 )

  20. MSLT (62:15 )

  21. Treat Clinically (65:00 )

  22. 4 pillars of management (66:00 )

  23. Patient request/feedback (68:00 )

  24. Academic vs private practice (71:30 )


 


 


Links to articles and guidelines referenced in this episode are included 


Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.


Treatment of central disorders of hypersomnolence: an American Academy of Sleep Medicine clinical practice guideline

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Episode #9 Patient Centered View of Narcolepsy

Episode #9 Patient Centered View of Narcolepsy

The White Noise Podcast