Episode #9 Patient Centered View of Narcolepsy
Update: 2022-08-03
Description
In this months episode we discuss narcolepsy with Matthew Horsnell. Matt is a narcolepsy patient and advocate, and we discuss his journey of living with narcolepsy.
SHOW NOTES
- Introduction of Guest: (5:00 )
- Matt’s Best Advice (11:00 )
- Matt’s Role in the sleep community (12:40 )
- Matt’s symptoms onset (15:00 )
- Matt’s additional symptoms (19:00 )
- Matt’s onset of cataplexy (23:00 )
- Cataplexy triggers (24:45 )
- Delayed diagnosis: (27:00 )
- Nightmares and sleep paralysis onset (31:30 )
- One more question about sleep paralysis (34:15 )
- Partial cataplexy (37:50 )
- Diagnosis and Management: (39:00 )
- Pitolisant (43:45 )
- Strategic Napping (44:15 )
- Bitter Pills (45:15 )
- AASM revised Guidelines (47:22 )
- Sodium Oxybate and Cataplexy (49:00 )
- Finding a sleep physician to manage narcolepsy (55:00 )
- Sleep apnea (60:30 )
- MSLT (62:15 )
- Treat Clinically (65:00 )
- 4 pillars of management (66:00 )
- Patient request/feedback (68:00 )
- Academic vs private practice (71:30 )
Links to articles and guidelines referenced in this episode are included
Trotti LM. Central Disorders of Hypersomnolence. Continuum (Minneap Minn). 2020 Aug;26(4):890-907.
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