Episode 94 - Advocacy Rocks
Description
In this episode of Take a Pain Check, we are joined by Ella Rabin, who shares her journey with Juvenile Arthritis (JA). Ella introduces herself, discussing her education, hobbies, and future aspirations. She details her diagnosis story, including the initial symptoms and changes over time, and speaks about her family history with arthritis, particularly her mother's experience. Ella emphasizes the importance of a strong support system from family and friends, addresses misconceptions about arthritis, and discusses the impact on her activities like cheerleading and tap dancing. She also shares her experiences with school accommodations and the significance of self-advocacy. Furthermore, Ella talks about her involvement with the Arthritis Foundation and her own initiative, Advocacy in Action. The episode concludes with Ella offering advice for newly diagnosed kids and recommending resources for learning about JA.
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