HIE Beyond the Diagnosis: Navigating the NICU and Its Lifelong Impact
Update: 2025-04-30
Description
In this powerful episode honoring HIE Awareness Month, Neonatal Nurse Practitioner Jessica Fulton shares the raw and emotional story of her son Bo’s birth — a delivery marked by unexpected complications that led to a diagnosis of Hypoxic-Ischemic Encephalopathy (HIE).
Jessica opens up about what it was like to watch her own son become a critical patient in the very NICU where she had worked for years — as her personal and professional worlds suddenly collided. She speaks candidly about the shocking helplessness she felt as a parent, despite her medical background, and the lifelong challenges that continue to follow: a cerebral palsy diagnosis, fierce advocacy, intensive therapies, emotional isolation, and the realities of parenting a child with complex needs.
This episode is a must-listen for NICU parents, healthcare providers, and anyone supporting a family navigating the lifelong impact of HIE.
Dr. Brown’s Medical: https://www.drbrownsmedical.com
Our NICU Roadmap: A Comprehensive NICU Journal: https://empoweringnicuparents.com/nicujournal/
NICU Mama Hats: https://empoweringnicuparents.com/hats/
NICU Milestone Cards: https://empoweringnicuparents.com/nicuproducts/
Newborn Holiday Cards: https://empoweringnicuparents.com/shop/
Empowering NICU Parents Show Notes: https://empoweringnicuparents.com/shownotes/
Episode 68 Show Notes: https://empoweringnicuparents.com/episode68
Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/
Empowering NICU Parents FB Group: https://www.facebook.com/groups/empoweringnicuparents
Pinterest Page: https://pin.it/36MJjmH
Thank you for listening to the Empowering NICU Parents Podcast. Be sure to subscribe and leave us a review—it helps other families find us. We’re grateful to be part of this incredible community. Visit www.empoweringnicuparents.com for resources and support.
Jessica opens up about what it was like to watch her own son become a critical patient in the very NICU where she had worked for years — as her personal and professional worlds suddenly collided. She speaks candidly about the shocking helplessness she felt as a parent, despite her medical background, and the lifelong challenges that continue to follow: a cerebral palsy diagnosis, fierce advocacy, intensive therapies, emotional isolation, and the realities of parenting a child with complex needs.
This episode is a must-listen for NICU parents, healthcare providers, and anyone supporting a family navigating the lifelong impact of HIE.
Dr. Brown’s Medical: https://www.drbrownsmedical.com
Our NICU Roadmap: A Comprehensive NICU Journal: https://empoweringnicuparents.com/nicujournal/
NICU Mama Hats: https://empoweringnicuparents.com/hats/
NICU Milestone Cards: https://empoweringnicuparents.com/nicuproducts/
Newborn Holiday Cards: https://empoweringnicuparents.com/shop/
Empowering NICU Parents Show Notes: https://empoweringnicuparents.com/shownotes/
Episode 68 Show Notes: https://empoweringnicuparents.com/episode68
Empowering NICU Parents Instagram: https://www.instagram.com/empoweringnicuparents/
Empowering NICU Parents FB Group: https://www.facebook.com/groups/empoweringnicuparents
Pinterest Page: https://pin.it/36MJjmH
Thank you for listening to the Empowering NICU Parents Podcast. Be sure to subscribe and leave us a review—it helps other families find us. We’re grateful to be part of this incredible community. Visit www.empoweringnicuparents.com for resources and support.
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