DiscoverThe Rare Disease PodcastHow guidelines have the potential to confuse people, and why!
How guidelines have the potential to confuse people, and why!

How guidelines have the potential to confuse people, and why!

Update: 2024-10-17
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For this week's episode of the podcast, Lucy speaks with Grace Knight, who is one of our ambassadors working as a junior doctor and is back for her second podcast with us. She got involved with M4RD when her brother was diagnosed with a rare disease, which changed her perspective of diagnosis and patient experience.

Lucy and Grace talk through the NICE (National Institute of Clinical Excellence) guidelines and discuss what has already been changed and what could be changed.

If you would like to listen to Grace's original episode, search 'Dr Grace, brother Eddie, Addison's Disease and ED'.

If you would like to download the handbook 'Mind the Gap - A handbook of clinical signs in Black and Brown skin', you can do so here https://www.blackandbrownskin.co.uk/mindthegap 

Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.

M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.

M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare

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How guidelines have the potential to confuse people, and why!

How guidelines have the potential to confuse people, and why!