Life with Marfan syndrome: Comedy, courage, and cutting-edge science
Description
Marfan syndrome is a rare genetic condition that affects the body’s connective tissue, sometimes in ways that are life-threatening, and often life-changing. Meet three people whose stories reveal the risks, resilience, and even humor of living with Marfan.
Dr. John Elefteriades, one of the world’s leading aortic surgeons, explains how new AI tools could revolutionize diagnosis. British engineer Tal Golesworthy recalls how he designed the device that saved his own heart. And comedian Liam Nelson shares how his height, surgeries, and community shaped both his life and his stand-up.
For more information, visit the Marfan Foundation.
Suggested episodes:
GUESTS:
- Dr. John Elefteriades: Cardiothoracic surgeon, researcher, and educator. He is a Professor of Surgery at Yale School of Medicine, and a founding director (Emeritus) of the Aortic Institute at Yale-New Haven
- Tal Golesworthy: British engineer with Marfan syndrome, who persuaded surgeons to implant a device that he developed in his heart in 2004. It's called the ExoVasc Personalised External Aortic Root Support, or PEARS
- Liam Nelson: Atlanta, Georgia-based comedian and advocate who has Marfan syndrome
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United States
