Aisha was diagnosed with a rare disease from birth: Morquio Syndrome. 

She speaks in an honest way about her life in Malawi and Leicester, the importance of family to her, growing up and the different parts of her identity that have formed who she is today.  Aisha talks about her day to day life,  including being a wheelchair user. 

We also get to hear a glimpse of how Aisha doesn’t always only want to be identified as a disabled woman.  She speaks movingly about her Islamic faith and what that means to her and how she uses that for strength during challenging times.  We also hear about some of the campaigning Aisha does and with more to come. 

Aisha is a wonderful, kind, funny young woman and it was so good to have her on the podcast.

Aisha is a patient ambassador for Medics 4 Rare Diseases

They can be found on 

Twitter

Instagram

Facebook

And here is the website for the MPS Society which relates to Aisha’s condition. 

She is also a guest speaker at Demontfort University in Leicester. 
 
#DareToBeRare