DiscoverImmune Deficiency FoundationLiving well with PI: Impact of federal policy changes on the PI community
Living well with PI: Impact of federal policy changes on the PI community

Living well with PI: Impact of federal policy changes on the PI community

Update: 2025-04-24
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Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Legislative%20webinar.pdf


This panel discussion features Immune Deficiency Foundation CEO Jorey Berry, as well as Chief Public Policy Officer Lynn Albizo, Community Resource Navigator Angie Kotarski, and Jodi Taub, owner of Jodi Taub Therapy, discuss the impact of recent federal policy changes on the PI community.

The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.

LINKS:

https://primaryimmune.org/get-involve...
www.medicare.gov
www.medicaid.gov
www.healthcare.gov
www.usa.gov/state-health
www.naccho.org/membership/lhd-directory
https://www.kff.org/
www.commonwealthfund.org
www.accessiahealth.org
www.patientadvocate.org
www.triagehealth.org
www.rarediseasediversity.org/rddc-get-involved
www.patientsrising.org
www.rarediseases.org/get-involved/
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Living well with PI: Impact of federal policy changes on the PI community

Living well with PI: Impact of federal policy changes on the PI community

Immune Deficiency Foundation