DiscoverRare Mamas Rising: A Rare Disease PodcastLoving With Every Breath with Breath Taking Author Jessica Fein
Loving With Every Breath with Breath Taking Author Jessica Fein

Loving With Every Breath with Breath Taking Author Jessica Fein

Update: 2024-09-18
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RARE MAMAS RISING- EPISODE 41

Loving with Every Breath with Breath Taking Author Jessica Fein

Jessica Fein is the author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the "I Don't Know How You Do It" podcast, which features people whose lives seem unimaginable and who triumph over seemingly impossible challenges. Her writing has appeared in Newsweek, Psychology Today, The Boston Globe, HuffPost, Scary Mommy, Zibby Mag, Kveller, and more. Jessica is a relentless warrior in memory of her dynamic daughter, whom she lost to the rare disease MERRF Syndrome in 2022. Her work encompasses hope and humor, grit and grace–the tools that make up her personal survival kit. Jessica serves on the Board of Directors of MitoAction. She's the mother of three, whom she and her husband adopted from Guatemala. In this episode, Jessica shares her powerful journey with raw honesty, wisdom, and heart. Join us as we explore the intertwined emotions of joy and sorrow, love and loss, and uncover why Jessica's new book is truly a love story and a moving testament to the enduring power of love.

 

EPISODE HIGHLIGHTS

  • Background about Jessica and her family 
  • How, as a problem-solver by nature, Jessica dealt with an unsolvable situation
  • The difference between living in fear and living with fear
  • Nurturing the conflicting emotions of sorrow and joy  
  • Staying present while experiencing painful circumstances
  • The journey to writing Breath Taking
  • Why Breath Taking is described as a love story
  • Jessica's hopes for her book
  • Jessica's learnings and advice for other rare mamas

 

LINKS & RESOURCES MENTIONED

Jessica Fein

jessicafeinstories.com
https://www.instagram.com/feinjessica/

https://www.facebook.com/jessica.fein.92/

https://www.linkedin.com/in/jessica-fein-b643b09/

https://podcasts.apple.com/us/podcast/i-dont-know-how-you-do-it/id1668168226

 

Breath Taking

jessicafeinstories.com

https://www.goodreads.com/author/show/826590.Jessica_Fein

 

Mito Action

https://www.mitoaction.org

 

CONNECT WITH NIKKI

Website

https://raremamas.com/

Instagram

https://www.instagram.com/Rare_Mamas/

Email

info@raremamas.com

 

PODCAST INQUIRIES

podcast@raremamas.com

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Loving With Every Breath with Breath Taking Author Jessica Fein

Loving With Every Breath with Breath Taking Author Jessica Fein