Lucas: Epidermolysis Bullosa Simplex
Description
Our first episode with Matt Witts interviewing one of our All 4 Inclusion members.
Lucas is a keen photographer and has a rare condition called Epidermolysis Bullosa Simplex, also known as E.B Simplex.
In this conversation, Lucas shares his personal experiences living with epidermolysis bullosa simplex, a rare genetic skin condition that causes severe blistering.
He discusses the daily challenges he faces, including pain management, mobility issues, and the emotional impact of living with a disability.
The conversation also covers practical advice for others with similar conditions, emphasizing the importance of understanding and empathy.
#Epidermolysis Bullosa
#disability awareness
#chronic pain
#personal experiences
#skin conditions
#empathy
#healthcare
#living with disabilities
#advice for patients
#rare diseases
United States
