About Nikki:

Nikki McIntosh is the founder of Rare Mamas®, a resource and community dedicated to empowering mothers of children with rare diseases, and host of the Rare Mamas Rising podcast. Her mission stems from the profound need she felt after her son was diagnosed with a rare disease, fueling her with a passion and purpose to offer a lifeline of hope and connection to other rare moms.

Nikki is a sought-after speaker and a trusted voice in the rare disease space. From national conferences and patient advocacy group gatherings to biotech industry meetings and media interviews, Nikki passionately advocates for the rare disease community. She lives in Southern California with her husband Tony and their sons Mason and Miles.

About the Episode: 

In this heartfelt episode, Nikki McIntosh shares her transformative journey as a mother navigating the challenges of raising a child with a rare neuromuscular disease. From the initial shock of diagnosis to becoming a beacon of hope and support for other rare moms, Nikki's story is one of resilience, faith, and community. Join hosts Becky Davidson and Nikki as they discuss the creation of the Rare Mamas organization, the power of advocacy, and the importance of finding strength in shared experiences. Whether you're a parent, caregiver, or simply seeking inspiration, this episode offers valuable insights and encouragement. Tune in to discover how Nikki's journey can empower you to face life's challenges with hope and determination.

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