DiscoverEUCOPE's Sounds of ScienceOvercoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare
Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare

Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare

Update: 2022-06-06
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SOUNDS OF SCIENCE - EPISODE 6


The Cross-Border Healthcare Directive (Directive 2011/24/EU) marked a milestone for European patients. It created a legal framework for the patient’s right to seek healthcare in another Member State and to be reimbursed. It also provided a legal basis for enhanced European cooperation in key areas of healthcare – including quality and safety, Health Technology Assessment and eHealth, and rare diseases.


On May 12, the Commission published their long awaited evaluation of the Cross-Border Healthcare Directive. The report outlines several areas for improvement, but does not call for a reopening of the Directive, which would be a political decision as well.


As more Advanced Therapy Medicinal Products (ATMPs) have become available across Member States, it is still unclear how the cross-border healthcare framework will make access to such transformative treatment abroad more accessible. In this podcast, we’re addressing a number of complex issues with a lot of terminology so today we’ll be discussing the CBH in a holistic manner. The speakers will be able to clarify between the concept of CBH and the Directive itself.


Joining us on this podcast are:



  • Thomas Bols, Head of Government Affairs and Patient Engagement, PTC Therapeutics 

  • Victor Maertens, Government Affairs Manager, EUCOPE


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The European Alliance for Transformative Therapies (TRANSFORM)  is a multi-stakeholder Alliance that connects Members of the European Parliament (MEPs) and policy-makers with patient groups, medical experts and associations, scientists, researchers, industry actors, networks and other relevant stakeholders. More info at https://transformalliance.eu/


EUCOPE's Position Paper - Cross Border Healthcare for Patients: What can be done?


Learn more about EUCOPE at www.eucope.org

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Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare

Overcoming Barriers: Improving Access for Rare Disease Patients through Cross-Border Healthcare

EUCOPE