Preimplantation Genetic Testing: Barriers to Access
Update: 2025-02-03
Description
This episode of the Progress Educational Trust (PET) podcast discusses access to and funding for preimplantation genetic testing (PGT), specifically in relation to monogenic conditions (PGT-M) and chromosomal structural rearrangements (PGT-SR).
The discussion is chaired by Sarah Norcross (Director of PET), with contributions from:
⚫ Charlotte Tomlinson (Clinical Genetics PGT Lead at Guy's Hospital)
⚫ Dr Melanie Nana (Clinical Research Fellow at King's College London)
⚫ Professor Frances Flinter (Chair of the Human Fertilisation and Embryology Authority's Statutory Approvals Committee)
⚫ Nick Meade (Director of Policy at Genetic Alliance UK)
⚫ Diana Perry (founder and Chief Executive of the Ectodermal Dysplasia Society)
PGT-M and PGT-SR both involve testing and selecting IVF embryos, in order to avoid – or reduce the risk of – genetic conditions that could jeopardise a pregnancy or affect the health of a future child.
This podcast explains and explores:
⚫ What PGT can – and should – be used for.
⚫ Why it can be difficult for some patients to access PGT.
⚫ What might be done to remove barriers to access.
PET is grateful to the D'Oyly Carte Charitable Trust for supporting this discussion.
PET is also grateful to Jon Nicoll, who created the opening and closing music for its podcast.
Register at https://www.progress.org.uk/events/upcoming-events/ for upcoming PET events.
The discussion is chaired by Sarah Norcross (Director of PET), with contributions from:
⚫ Charlotte Tomlinson (Clinical Genetics PGT Lead at Guy's Hospital)
⚫ Dr Melanie Nana (Clinical Research Fellow at King's College London)
⚫ Professor Frances Flinter (Chair of the Human Fertilisation and Embryology Authority's Statutory Approvals Committee)
⚫ Nick Meade (Director of Policy at Genetic Alliance UK)
⚫ Diana Perry (founder and Chief Executive of the Ectodermal Dysplasia Society)
PGT-M and PGT-SR both involve testing and selecting IVF embryos, in order to avoid – or reduce the risk of – genetic conditions that could jeopardise a pregnancy or affect the health of a future child.
This podcast explains and explores:
⚫ What PGT can – and should – be used for.
⚫ Why it can be difficult for some patients to access PGT.
⚫ What might be done to remove barriers to access.
PET is grateful to the D'Oyly Carte Charitable Trust for supporting this discussion.
PET is also grateful to Jon Nicoll, who created the opening and closing music for its podcast.
Register at https://www.progress.org.uk/events/upcoming-events/ for upcoming PET events.
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