Rare Disease Day Series: Sotos Syndrome Association Inc.
Update: 2023-02-17
Description
As part of our Rare Disease Day podcast series, Emily chats with Lisa Rynne, the co-founder of Sotos Syndrome Association, about the rare condition, her experience as a mother of a child with Sotos, and the importance of raising awareness about rare, genetic, and undiagnosed conditions.
To learn more about Sotos Syndrome Association Inc, contact info@sotos.org.au.
To find out about peer Support Groups in WA, contact ConnectGroups at info@connectgroups.org.au.
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