DiscoverHidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditionsRedefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges
Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges

Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges

Update: 2024-10-30
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In this episode of Hidden Diagnosis Impact, Christina shares her powerful journey living with Ehlers-Danlos Syndrome (EDS) and the complexities of navigating a healthcare system that often overlooks rare conditions. 

Christina opens up about her early symptoms, the pain of repeated misdiagnoses, and the emotional toll of being dismissed and mischaracterized by doctors. Her story sheds light on the physical challenges of EDS, from spinal instability to brainstem complications. Christina has redefined recovery, seeing it as a continuous process of adaptation and self-care rather than a cure. 

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Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges

Redefining Recovery: Christina’s Journey Living with EDS and Its Hidden Challenges

Amy Wang-Hiller