In this episode recorded at the start of GBS|CIDP Awareness Month I chat to Rich Collins CEO at GAIN Charity in the UK. 

GAIN stands for Guillain-Barré Syndrome & Associated Inflammatory Neuropathies. It is the only charity dedicated to supporting the GBS, CIDP and MMN community in the UK and Republic of Ireland. 

Rich joined GAIN at the start of the year and has wasted no time getting to know the community. In this conversation we touch on everything from the challenge of trying to be heard as a small charity and community through to the importance of long term support for those affected by both acute and chronic conditions. Somehow we also manage to weave in discussions about why supporting a football team is like being part of a rare disease community and why we would both love to see a soap opera storyline featuring rare diseases. 

Rich and the team at GAIN are looking to grow their reach and impact.  

To learn more go to https://gaincharity.org.uk/ and please get in touch with Rich and the team by email at  office@gaincharity.org.uk, on the phone on freephone 0800 374803 in the UK and 1800 806152 in Ireland. They would love to hear from you.