S3 E6 - Haemochromatosis & the Power of the Patient Voice
Update: 2024-11-18
Description
We round off Season 3 of The Road to Genome with a powerful interview with Chris Hind, Chair of the Patient & Public Voice Forum in the East Genomic Medicine Service Alliance.
Chris talks to Helen about his personal experience on the diagnostic journey, dealing with Haemochromatosis, Prostate Cancer testing, and the effects this can have on family and life in general. Chris also highlights the incredible work that the Patient & Public Voice forums can do to change the patient pathways, and help to improve the journey for all.
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