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In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas shares his experiences living with Type 1 narcolepsy, detailing his daily struggles with sleepiness, cataplexy, and how he manages to stay active. Kathy provides insights into the challenges of navigating the Canadian healthcare system, advocating for better support and understanding for pediatric narcolepsy. The episode also highlights the importance of community support and awareness in managing sleep disorders. Additionally, Kerry announces the launch of their new Patreon and merch store to help support their advocacy efforts.

Highlights:

02:45 Lucas's Narcolepsy Journey

09:06 Sleep Tests and Diagnosis

12:04 Support Systems and Coping Strategies

19:37 Parental Perspective on Narcolepsy

29:01 Challenges with Medical Support

32:15 Iron Deficiency and Its Impact

48:30 Raising Awareness and Seeking Support

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***If you find these symptoms relatable, please seek medical advice.***