Stronger together: changing the future of muscle wasting condition
Description
Listen to our Rare Disease Day Optimum Perspecitives podcast special featuring Tahira Mathur, Patient Advocate and Kate Adcock, Director of Research & Innovation at Optimum's chosen charity Muscular Dystrophy UK, alongside Jasper Morrow, consultant neurologist at University College London Hospital.
This emotional yet hopeful episode highlights the importance of raising awareness of rare conditions, while discussing patient care, diagnosis, and genetic testing for Muscular Dystrophy.
If you would like to contribute to the life changing work of Muscular Dystrophy UK, or find out more about Tahira's story living with GNE myopathy, visit her page here: Tahira's Team - JustGiving
Hosted on Acast. See acast.com/privacy for more information.
United States
