DiscoverWhat Next | Daily News and AnalysisTBD | 23andMe...And a Looming Data Disaster
TBD | 23andMe...And a Looming Data Disaster

TBD | 23andMe...And a Looming Data Disaster

Update: 2024-10-131
Share

Digest

The podcast delves into the world of DNA testing, starting with an introduction to 23andMe and its services. It then traces the history of DNA testing, highlighting the rise and fall of 23andMe and the potential impact of sharing genetic information online. The podcast explores the ethical concerns surrounding genetic data, including privacy breaches, potential misuse, and the unique nature of this type of information. It discusses the current regulations in place, such as the Genetic Information Nondiscrimination Act (GINA), and their limitations. The podcast concludes by reflecting on the changing attitudes towards technology, from initial optimism to current concerns about privacy and misuse.

Outlines

00:00:00
Introduction and DNA Testing

The podcast introduces the topic of DNA testing and the company 23andMe, discussing its services and the potential impact of genetic information being shared online.

00:00:59
Data Privacy and Ethical Concerns

The podcast explores the potential implications of 23andMe's data being sold or transferred, highlighting the ethical concerns surrounding data privacy and the unique nature of genetic information.

00:25:35
Regulations and Future Outlook

The podcast discusses the current regulations surrounding genetic data, including GINA, and their limitations. It concludes by reflecting on the changing attitudes towards technology and the uncertain future of DNA testing.

Keywords

DNA Testing


The process of analyzing an individual's DNA to identify genetic variations, ancestry, and potential health risks.

23andMe


A consumer genetics company that provides DNA testing services for ancestry, health, and traits.

Genetic Information Nondiscrimination Act (GINA)


A US law that prohibits health insurers from using genetic information to deny coverage or charge higher premiums.

Data Privacy


The protection of personal information, including genetic data, from unauthorized access, use, or disclosure.

Techno Optimism


A belief in the positive potential of technology to solve problems and improve society.

Dystopian


A pessimistic view of the future, often characterized by social and environmental decline.

Q&A

  • What are some of the challenges facing 23andMe?

    23andMe faces challenges such as declining sales, privacy concerns, and the difficulty of turning a profit from its drug development business.

  • How has the public's perception of DNA testing changed over time?

    Initially, there was great optimism about the potential of DNA testing to unlock the secrets of health and ancestry. However, concerns about privacy, misuse, and the limitations of the technology have led to a more cautious approach.

  • What are the ethical implications of sharing genetic information online?

    Sharing genetic information online raises ethical concerns about privacy, potential misuse by third parties, and the potential for discrimination based on genetic information.

  • What regulations are in place to protect genetic data?

    The Genetic Information Nondiscrimination Act (GINA) protects against health insurers using genetic information to deny coverage or charge higher premiums. However, there are loopholes in GINA, and it does not protect against all potential uses of genetic data.

  • What is the future of DNA testing?

    The future of DNA testing is uncertain. While the technology has the potential to revolutionize healthcare and our understanding of ourselves, concerns about privacy and misuse need to be addressed.

Show Notes

How did 23andMe go from the peak of the double-helix to a death spiral? And if it goes under, is all of the genetic data it collected at risk? 


Guest: Kristen V. Brown, staff writer covering health for The Atlantic.


Want more What Next TBD? Subscribe to Slate Plus to access ad-free listening to the whole What Next family and all your favorite Slate podcasts. Subscribe today on Apple Podcasts by clicking “Try Free” at the top of our show page. Sign up now at slate.com/whatnextplus to get access wherever you listen.


Podcast production by Evan Campbell, Patrick Fort, and Cheyna Roth.

Learn more about your ad choices. Visit megaphone.fm/adchoices

Comments 
00:00
00:00
x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Sleep Timer

Off

End of Episode

5 Minutes

10 Minutes

15 Minutes

30 Minutes

45 Minutes

60 Minutes

120 Minutes

TBD | 23andMe...And a Looming Data Disaster

TBD | 23andMe...And a Looming Data Disaster

Slate Podcasts