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The Blackhole of ME/CFS Medical Care

The Blackhole of ME/CFS Medical Care

Update: 2025-01-20

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My bloodwork never matches how I feel. Treatments don't work or make me worse. I am constantly dumping energy into seeking new treatments that likely won't work. This system has failed us...

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In Channel

One Thing ☝️

One Thing ☝️

2025-11-0501:45

Remembering What Real Life Is Like

Remembering What Real Life Is Like

2025-08-2706:30

A Moment of Silence for Severe ME/CFS Patients

A Moment of Silence for Severe ME/CFS Patients

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Living In Unknowns

Living In Unknowns

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Too Many Of Us Are Dying

Too Many Of Us Are Dying

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Dear America,

Dear America,

2025-07-0708:46

4th of July Disgrace

4th of July Disgrace

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Growing Up With ME/CFS

Growing Up With ME/CFS

2025-06-1104:34

Dear Healthy People

Dear Healthy People

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This Ain't No F*ing Flu

This Ain't No F*ing Flu

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Unseen Courage

Unseen Courage

2025-05-1201:54

This Is ME/CFS

This Is ME/CFS

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Chocolate Fix!

Chocolate Fix!

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Cutting 99.7% Out Of Your Life

Cutting 99.7% Out Of Your Life

2025-03-2701:54

My New Print Store!

My New Print Store!

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The Forever Night Of ME/CFS

The Forever Night Of ME/CFS

2025-03-0402:10

I Started Eating Food Again in 2024...What Will 2025 Bring?

I Started Eating Food Again in 2024...What Will 2025 Bring?

2025-02-1710:04

The 2025 ME/CFS Valentine's Day Challenge!

The 2025 ME/CFS Valentine's Day Challenge!

2025-02-1402:31

Letter to my Fingernails from my Nervous System

Letter to my Fingernails from my Nervous System

2025-02-1001:38

The Blackhole of ME/CFS Medical Care

The Blackhole of ME/CFS Medical Care

2025-01-2003:25

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The Blackhole of ME/CFS Medical Care

The Blackhole of ME/CFS Medical Care

Whitney Dafoe